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Breathless for Rynah

Breathless for Rynah

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‼️ Today VSU and ‘Right to Breathe’ representatives were at Vertex’s HQ in Boston to take a powerful message to Vertex: How many billions is enough? 💜 CF mums - Urte from Lithuania, Pratibha from India & Gayle from the UK joined forces to share their stories & give a clear message to Vertex - every patient in every country has the right to breathe. #vsu #righttobreathe #cysticfibrosis #vertexpharmaceuticals #nooneleftbehind #trikafta4all 03/11/2023

https://fb.watch/o5dG6TTgKK/?mibextid=ZbWKwL

‼️ Today VSU and ‘Right to Breathe’ representatives were at Vertex’s HQ in Boston to take a powerful message to Vertex: How many billions is enough? 💜 CF mums - Urte from Lithuania, Pratibha from India & Gayle from the UK joined forces to share their stories & give a clear message to Vertex - every patient in every country has the right to breathe. #vsu #righttobreathe #cysticfibrosis #vertexpharmaceuticals #nooneleftbehind #trikafta4all

04/05/2023

: The “65 Roses” story dates back to 1965 when an observant 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as "65 Roses."

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Fish Hoek
Cape Town
7975