MLD Foundation

Today we celebrate Rare Disease Day and the accomplishments that have been made so far. There is still much to do but today we celebrate the WINS!❤️

MLD Foundation is thankful to HHS Sec Kennedy for adding MLD NBS to the RUSP and to Stephanie Haridopolos, Chief of Staff/Senior Advisor to the Surgeon General, for being our champion and the whole MLD community working together to accomplish this goal!

As 2025 comes to an end and we usher in 2026, MLD Foundation wants to wish our MLD family, their families, and friends a Happy New Year! We celebrated a momentous event when MLD NBS was added to the RUSP but there is more to do. Your year end, tax deductible gift to MLD Foundation helps ensures we will be there to support MLD families, MLD NBS will be on every state NBS panel, and the research for life changing therapies continues. May 2026 be another year of celebrations for the MLD community!
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