ALS TDI

"There is still a lot of living to be done with the disease."

In a new blog, ALS 100 Chief Inspiration Officer Zach shares how living with ALS led him to the ALS 100 and why he's committed to raising awareness and funds for research.

Follow on Instagram and LinkedIn as we countdown to event day June 16th and get to know the people behind the mission and follow along as the ALS 100 takes on 100 holes of golf in just one day to raise funds and awareness for ALS research.

Read the full blog: https://www.als.net/news/l-i-v-i-n-with-als/

Looking for a way to make an impact this June? 💙

Join us at one of our upcoming events, including community fundraisers, educational programs, Kids Quest to Cure ALS, The ALS 100, and the 2026 Tri-State Trek. Every event, every participant, and every dollar raised helps support research aimed at ending ALS.

Check out what's happening this month and find an event that's right for you: https://www.als.net/als-events/upcoming/

Yesterday, Stuart Chapin dipped the rear tire of his bike into the Atlantic Ocean and officially began a 5,000+ mile journey across the country in honor of his father, Scott, who passed away from ALS.

Over the next 76 days, Stuart will ride from New York to San Francisco while fundraising for ALS research at ALS TDI through his effort, Going the Distance for ALS

What makes this ride especially powerful is not just the distance, but the purpose behind it. Like so many families affected by ALS, Stuart witnessed firsthand how devastating this disease is. Now, he’s turning his experience into action.

Along the way, he’ll share stories from the ALS community, connect with supporters across the country, and raise critical funds to help advance research toward treatments and cures.

Read more about Stuart’s story and follow his journey here: https://www.als.net/news/going-the-distance-for-als-research/