Jax Strong

It has been a long year but thankfully with only two hospital trips outside of Ohio our boy has made it to his appointments 💕💕💕💕💕💕 he is doing great and passing with flying colors! They are now taking him off of his penicillin even if it’s one med thankfully we are down that! He will continue to take creon and dekus probably all his life! Let’s see if we can come off insulin too 💕💕💕💕💕💕 mix meal test this morning to check on islets and then our journey of 10 hours home!!!!! Thank you to everyone that follows our little dude, that prays with us, that have helped in all ways, that have called messaged, dropped by! We love you all ❤️❤️❤️❤️❤️❤️

Our first Tpiat fever protocol trip to Richland hospital. Jax said he wasn’t feeling well about 2pm this afternoon. No fever, no redness. About 3pm he was home and sleeping. About 5 or 530pm we attempted to wake him when we realized he was hot. His temp was 99.3. After getting him in the bath and back laying down his temp was 100.7. At this point it’s time to go to the hospital for blood work, antibiotics, and fluids. On the trip we took his temp again it was 101.7. After an hour drive and three times throwing up we made it to Richland children’s hospital. Blood work, fluids, antibiotics, zofran, covid/flu/strep test have been done. We are still waiting on blood work to come back. If all is okay he will go home and follow up with p*p for blood work and antibiotics again tomorrow. If bloodwork comes back off he will be admitted and we will go from there. Ohio has been notified and is keeping in touch as this process goes along! Prayers is all this mama can ask for!l

Mix meal test is done we will have those results later. Surgery is impressed with how everything is going and how he looks! No changes are being done right now and we will see them in the new year. We have one more appointment at 2 and we will be done for today. We will see the endocrinologist tomorrow to go over his numbers and things and we will be headed home afterwords. ❤️

We received his first card from make a wish! Since undergoing a life changing event the doctors and nurses put in Jax’s name for a wish. ❤️ he is beyond excited!