Choroideremia Research Foundation

What an incredible day on the course! ⛳️

A heartfelt thank you to CHMer Dave Rumpel and his friends for hosting the 8th Annual 18-Hole Fundraiser Special Vision Golf Outing benefiting the Choroideremia Research Foundation (CRF) and Area 22 Special Olympics.

Held at Valley View Farm Golf Course in Saginaw, Michigan, this year's event welcomed 140 golfers and raised an incredible $15,000, with $7,500 being donated to each charity.

We are deeply grateful to everyone who participated, volunteered, sponsored, and supported this event. Your generosity helps advance CRF's mission and brings hope to individuals and families affected by choroideremia.

Thank you for making the 8th annual outing such a tremendous success!

Help send a first-time CHM family to the 2027 CRF International Conference. 💙

For many individuals and families affected by choroideremia, attending a CRF event for the first time can be truly life-changing. The conference gives CHMers and their families the opportunity to connect with others who understand the journey of living with CHM while gaining valuable resources, hearing from researchers, and building lasting friendships and support systems.

First-Timer Grants help remove barriers that may prevent families from attending.

The 2027 CRF International Conference will take place June 23–26, 2027 in Orlando, Florida.

To support a First-Timer Grant, select “In Honor Of,” then enter “Conference Grant” at: curechm.org/donation-form

The Choroideremia Research Foundation (CRF) is now accepting applications for its upcoming research grant cycle, with submissions due June 30, 2026.

Choroideremia Research Foundation Announces June 30 Research Grant Application Deadline The Choroideremia Research Foundation is now accepting grant applications for research focused on CHM through June 30.

SHARE to help others better understand Choroideremia (CHM).

Choroideremia (CHM) is an ultra-rare inherited retinal disease affecting approximately 1 in 50,000–100,000 people. Symptoms often begin with difficulty seeing in low light or at night and can gradually progress to peripheral vision loss over time.

This visual is designed to help illustrate how vision changes may occur for some individuals living with CHM.

While no graphic can fully capture lived experience, educational visuals like this can help families, friends, and communities better understand CHM and the importance of awareness, research, and support.

Join the drive for a cure: curechm.org/donation-form