Parent Project Muscular Dystrophy

📌 Reminder: The deadline to submit written comments to the FDA ahead of the Deramiocel Advisory Committee meeting is Monday, July 20, 2026.

Your voice matters. Written comments help ensure the Duchenne community's experiences and perspectives are considered during this important review process.

Check out our blog for tips and additional information, including a step-by-step Written Comment Guide: https://www.parentprojectmd.org/preparing-for-the-deramiocel-fda-advisory-committee-meeting-how-to-submit-written-testimony/

Preparing for the Deramiocel FDA Advisory Committee Meeting: How to Submit Written Testimony The FDA has scheduled an Advisory Committee meeting for July 29, 2026 to review Deramiocel, Capricor’s investigational cell therapy for Duchenne muscular dystrophy. The meeting will be held virtually, and a live stream will be...

⭐ 🤠 PPMD is headed to Dallas, TX next June for our 2027 Annual Conference, taking place June 24-26! And families save big on registration rates now through July 11, 2026!

🗓️ Mark your calendar and plan to join us for three days of learning, connecting, and recharging with the community. Register today! parentprojectmd.org/conference

🎙️ Season 7 of our Living Duchenne podcast continues with an inspiring conversation about raising an independent child in the early adult years.

Host Rachel Poysky sits down with guests Adam Wechsler, a 29-year-old man living with Duchenne, and Gretchen Agans, mom to a young adult living with Duchenne, to discuss navigating the transition to adulthood with independence, purpose, and possibility. Together, they explore opportunities in higher education, employment, volunteerism, entrepreneurship, and more, while sharing practical insights on supporting young adults as they build meaningful, self-directed lives.

🎧 Take a listen to Season 7 Episode 3: Raising an Independent Child – Early Adulthood, now available on Apple Podcasts, Spotify, or wherever you get your podcasts!

https://www.parentprojectmd.org/care/living-duchenne-podcast/season-7-raising-an-independent-child/