Adventures In Complexity

Starting off our full day in with back to back PT for Luca and then Caia.

Unfortunately two of our mid-afternoon appointments got cancelled because our Neurodevelopmental doctor is sick, so we have a long 2.5 hour break in the middle that we need to fill with something we have yet to figure out.

is being a great cuddle buddy 💙

These lucky kiddos completed an amazing week long OT intensive with Anna from and loved every single minute of it. They were super sad to be finished and want to start another intensive next week!!

Anna is a truly amazing OT who helps my kids achieve goals and laugh and smile while doing it. We are so thankful to have her on our team ❤️

We're spending about 5 hours at this morning for nephrology and pulmonary clinics.

Luca has been having high blood pressure readings for a while now so we got a referral to Nephrology and had an appointment booked for February. His blood pressure was much higher (163/104) when we were in the surgical center almost 2 weeks ago though and they were contemplating not going ahead with the anaesthesia, so they asked Nephrology to see us in Hypertension clinic sooner. They booked him in before the clinic started today, so we had to be here at 7.15am, which is much earlier than any of us like! We are not morning people!!

We spent 2 hours in Hypertension clinic and left with a 24 hour blood pressure monitor, lab orders to check kidney function, a referral for an echo, and a nutrition appointment and orders to increase his fluid intake! We will see what everything looks like and return to clinic in January unless something comes back that needs to be dealt with sooner.

We're now hanging out and doing virtual speech therapy appointments until our first pulmonary appointment for pulmonary function tests at 10.30. We then have pulmonary clinic at 11.30 before we head to PT for Luca and Caia at 1pm. Busy day!!

was also unhappy to be up so early and confused about Luca hand feeding him his breakfast in the car, but he is being an awesome support as always.