BWS Awareness Day
04/06/2026
Even though Beckwith-Wiedemann Syndrome (BWS) is rareโ
affecting about 1 in 10,000 births worldwideโ
that still means thousands of families across the globe ๐
And with IVF, the likelihood is higher.
Rare doesnโt mean small.
It means often unseen.
Letโs change that ๐๐
04/06/2026
Did you know?
Children with Beckwith-Wiedemann Syndrome (BWS) often need
regular tumor screening in early childhood.
This may include:
โข Ultrasounds
โข Blood tests
Early monitoring can detect risks soonerโ
and save lives ๐๐
Awareness makes this possible.
04/05/2026
BWS Awareness Day is moving across the world ๐๐๐
Join inโwhere are you from? ๐
Share. Wear green & yellow.
Spread awareness online + in your community.
04/05/2026
โจ Awareness moves across the worldโbecause of you.
BWS Awareness Day is moving across the world ๐๐๐
Starting in Samoa, and flowing through:
New Zealand ๐ณ๐ฟ Australia ๐ฆ๐บ Asia ๐
The Middle East & Africa ๐
Europe ๐ช๐บ UK & Ireland ๐ฌ๐ง
South America ๐
Eastern & Central North America ๐บ๐ธ
and ending on the Pacific Coast ๐
A wave of awareness is buildingโone voice at a time.
No matter where you are, you can be part of it.
Simple ways to participate:
๐ Share this post or create your own
๐ Wear green & yellow
๐ Start a conversation
๐ Support a family or organization
๐ Spread awareness online and in your local community
Drop where youโre joining from ๐
Letโs fill this space with voices from around the world ๐
Together, we make Beckwith-Wiedemann Syndrome visible ๐๐
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