BWS Awareness Day

BWS Awareness Day

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04/06/2026

Even though Beckwith-Wiedemann Syndrome (BWS) is rareโ€”
affecting about 1 in 10,000 births worldwideโ€”

that still means thousands of families across the globe ๐ŸŒ

And with IVF, the likelihood is higher.

Rare doesnโ€™t mean small.
It means often unseen.

Letโ€™s change that ๐Ÿ’š๐Ÿ’›

04/06/2026

Did you know?

Children with Beckwith-Wiedemann Syndrome (BWS) often need
regular tumor screening in early childhood.

This may include:
โ€ข Ultrasounds
โ€ข Blood tests

Early monitoring can detect risks soonerโ€”
and save lives ๐Ÿ’š๐Ÿ’›

Awareness makes this possible.

04/05/2026

BWS Awareness Day is moving across the world ๐ŸŒ๐Ÿ’š๐Ÿ’›

Join inโ€”where are you from? ๐Ÿ‘‡

Share. Wear green & yellow.
Spread awareness online + in your community.

04/05/2026

โœจ Awareness moves across the worldโ€”because of you.

BWS Awareness Day is moving across the world ๐ŸŒ๐Ÿ’š๐Ÿ’›

Starting in Samoa, and flowing through:
New Zealand ๐Ÿ‡ณ๐Ÿ‡ฟ Australia ๐Ÿ‡ฆ๐Ÿ‡บ Asia ๐ŸŒ
The Middle East & Africa ๐ŸŒ
Europe ๐Ÿ‡ช๐Ÿ‡บ UK & Ireland ๐Ÿ‡ฌ๐Ÿ‡ง
South America ๐ŸŒŽ
Eastern & Central North America ๐Ÿ‡บ๐Ÿ‡ธ
and ending on the Pacific Coast ๐ŸŒ…

A wave of awareness is buildingโ€”one voice at a time.

No matter where you are, you can be part of it.

Simple ways to participate:
๐Ÿ’š Share this post or create your own
๐Ÿ’› Wear green & yellow
๐Ÿ’š Start a conversation
๐Ÿ’› Support a family or organization
๐Ÿ’š Spread awareness online and in your local community

Drop where youโ€™re joining from ๐Ÿ‘‡
Letโ€™s fill this space with voices from around the world ๐ŸŒ

Together, we make Beckwith-Wiedemann Syndrome visible ๐Ÿ’š๐Ÿ’›

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