Cure AHC

💙 From Izzie Duval, VP of Patient & Family Support:

One of the questions I hear most often from families in our community is: How do we handle these behaviors?

Whether it’s aggression, emotional outbursts, anxiety, rigidity, impulsivity, meltdowns, or behaviors that seem to come out of nowhere, families affected by AHC and related disorders are often left feeling exhausted, overwhelmed, and hopeless.

Many of us start with traditional parenting strategies or even neurodivergent-informed approaches. Yet so often, the advice that works for other children seems to make things worse, not better. Finding professionals who truly understand this complexity and have strategies to help is incredibly challenging.

That’s why I am so excited to introduce Eileen Devine, LCSW, to the AHC community!

Eileen’s journey began as a parent herself. After adopting her daughter with FAS and developmental differences, she and her husband—an educator—found themselves facing many of the same challenges our families experience. The traditional approaches weren’t working. Determined to find a better way, Eileen discovered and immersed herself in Brain-First perspectives on behavior, a framework that transformed her family’s life and ultimately became her life’s work.

Today, Eileen is an internationally recognized speaker, parent educator, and host of the Brain First Parenting podcast. She has presented for organizations including the Child Neurology Foundation and the Lennox-Gastaut Syndrome Foundation, and offers parent courses, support groups, global virtual consultations, and educational resources.

I genuinely believe Eileen’s work will be an invaluable resource for our global community, and I am thrilled that our families will have the opportunity to learn from her.

I hope you’ll join us for Eileen’s presentation and live Q&A on Saturday, June 27 from 3:00–4:30 PM EDT, available to both in-person and virtual attendees and recorded for later viewing.

If you can’t attend live, feel free to send us your questions ahead of time and we’ll do our best to include them in the discussion.

— Izzie Duval, VP of Patient & Family Support

We are back!

This episode we are discussing all things Family Meeting! Hear from Izzie and Hannah as they discuss what not to miss, featured guests, and how to join from anywhere!

We can’t wait to see you all in 22 days!

Family Meeting Registration: https://www.cureahc.org/family-meeting

YouTube: https://youtu.be/zZZwLBROEAI

Spotify: https://open.spotify.com/episode/3duP6lpegsNQpJTRN9ldw5?si=Lsc5FSOTR_m3bTVcL3oyGQ

Apple Podcasts: https://podcasts.apple.com/us/podcast/behind-the-episode-an-advocacy-podcast-by-cure-ahc/id1881076654?i=1000771012461

We are officially ONE MONTH away from the 2026 Cure AHC Family & Science Gathering! 💙🧡

We’re excited to finally share the agenda for this year’s meeting! The weekend includes the latest research updates from world-class AHC researchers, live expert Q&As, an experienced parent panel, brain-first behavior support with Eileen Devine, and caregiver mental health support with Amanda Griffith Atkins.

Virtual attendance is available again this year. Virtual attendees will be able to watch presentations live and participate in live Q&A sessions throughout the weekend.

Virtual registration is $50.

A few time zone conversions for live sessions:
• California — 6:00 AM PDT
• Chicago — 8:00 AM CDT
• London — 2:00 PM BST
• Central Europe — 3:00 PM CEST
• Dubai — 5:00 PM GST
• São Paulo — 10:00 AM BRT
• China — 9:00 PM CST
• Australia (Sydney) — 11:00 PM AEST

🧡You can view the full agenda here: https://static1.squarespace.com/static/5bdfc7a3cef372e7bbfcb463/t/6a1dadd2ab0f493a33ec674c/1780329962252/Meeting+Agenda

🩵To register for virtual attendance: https://cureahc.charityproud.org/EventRegistration/Index/26166?fbclid=IwY2xjawQDFAZleHRuA2FlbQIxMABicmlkETIxakZpaXcwNlpHYTlNcG9sc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHk_R6S8mJqHLSKAgXN1oS8tIiy4eL-nAoAcXtl3olG7BWlhvlJOieC_MC00X_aem_2y3PUqrvGL760Vnv2ykyFQ