International Rett Syndrome Foundation - Oregon Page

You've been invited to this page because you are a family member of someone who experiences Rett Syndrome in Oregon (or close to Oregon). I want us to gather virtually every other week or monthly for a HAPPY HOUR. We can't be together physically but we can strengthen our community virtually. This page will mostly be INFORMATIONAL and RELATIONAL.

Please feel free to download, print, share, email, disseminate!! I've got other Strolls doin' some smack talking about how much money they've raised! Maybe Portland is more of a friend-raiser than a fundraiser? Prove me wrong!

Stroll families - did you geet a chance to unpack your team bags and find the application for the DM study in Boston? If your child is under 10, positive for Mecp2 and you are willing to travel to Boston for a 3 day intake with travel reimbursable up to $1000, fill out the application today! Jade is going in early November for her appointment...