Surviving severe me/cfs

I finally got approved for new medication from a compounded pharmacy.

I was hoping this medication would come from my doctor, but that didn’t happen.
My doctor has been radio silent since I confronted her about inadequate medical care.

As of now, it looks like I will need to find another doctor — but I don’t need to think about that today.

I feel excited and scared at the same time.

What if it fails?
What if it works?
What if it gets worse before it gets better?
Is this my last hope?

As of right now, this is the only accessible drug that may help me.

Not as symptom control — as a state change.

BUT WHAT IF IT FAILS ?

What then?

I’ve been daydreaming about a life that is a little more alive than what I have now.
Feeling the elements on my face — sun, snow, wind, sleet.
I don’t even care what it is, I just want to feel it.
Sleeping in the woods — not even in a tent. A cabin would be more than enough.
Fresh air.
Going into a store.
Seeing where my daughter lives for the first time.

It’s amazing how priorities shift.
What if I can work again?
Wouldn’t that be amazing?

Gosh, I’m getting ahead of myself.

WHAT IF IT FAILS?

Little foxy top got finished—too late for the season, but that’s how I roll (sloooowly). Looks pretty cute with the summery necklace I made a while back. 🦊☀️🧶

🙋