CTX Alliance

It's not too late to sign up! Click to register:
https://tinyurl.com/CTXCafe

Join us for the first-ever CAFE: CTX Alliance Family & Patient Exchange, an informal virtual gathering for CTX patients, families, and caregivers to connect, ask questions, and support one another.

We hope you’ll join us next week Friday, June 19 at 11 A.M. ET.

Join us for the first-ever CAFE: CTX Alliance Family & Patient Exchange, an informal virtual gathering for CTX patients, families, and caregivers to connect, ask questions, and support one another.

We hope you’ll join us Friday, June 19 at 11 AM ET.

Click to register:
https://tinyurl.com/CTXCafe

We’re very happy to have Ernst J. Schaefer, MD, as one of our speakers at this year’s CTX Summit!

The CTX Family & Science Summit is just 3 weeks away, and there’s still time to register! Join us to hear from leading experts, connect with CTX Alliance leadership, and engage with other CTX families.

Register here:
https://ulf.org/news/conference/

CTX Summit Agenda:
https://ctxalliance.org/ctx-meeting-at-ulf-conference

It only takes a few minutes to make a BIG impact.

Join CTX Alliance and add your own voice to the growing number of advocates calling on to pass a one-time surge of funding to screen every baby, in every state, for every recommended condition. It’s easy and effective to take action.

➡️ Visit surgetosave.org/act-now/
✔️ Enter your information to identify your Congressional representative
📝 Use our prewritten letter or customize your own message about the importance of
✉️ Submit your message and share with others!

Newborn screening saves lives, but only if we fund it. 💜

We’re excited to welcome Jennifer Rossen, MD, as one of our speakers at this year’s CTX Summit! Dr. Rossen also serves on the CTX Alliance Leadership team.

The CTX Family & Science Summit is just 28 days away, and there’s still time to register! Join us to hear from leading experts, connect with CTX Alliance leadership, and engage with other CTX families.

Register here:
https://ulf.org/news/conference/
CTX Summit Agenda:
https://ctxalliance.org/ctx-meeting-at-ulf-conference

We’re excited to introduce another one of our Summit speakers — Dr. Lei Ling!

The CTX Family & Science Summit is just 41 days away, and there’s still time to register. Join us to hear from leading experts, connect with CTX Alliance leadership, and engage with other CTX families.

Register here: https://ulf.org/news/conference/