Take Part Foundation

A genetic diagnosis is the foundation of effective care. Without it, families are left navigating symptoms without direction. With it, everything changes...treatment plans become clearer, insurance is more likely to approve next steps, families find support through connection with other families, and children gain access to the resources they need to thrive.

Take Part Foundation has funded 40 completed genetic tests, with dozes more approved...and many more to come. Of these...

* 5 children (12.5%) received informative genetic testing results

* 1 child had negative diagnostic results

* 34 children (85%) had a diagnostic finding that could contribute to a change in medical care with actionable steps

St. Louis Children’s Hospital described these outcomes as “magnificent.”

These diagnoses are not just labels. They are the starting point for targeted care, early interventions, and long-term stability for families.

Referrals for genetic testing are increasing rapidly.
To avoid exhausting available funds, the hospital has shared that they must be more selective in approvals over the next few months.

This means:
+ More families are being denied by insurance
+ More children are waiting
+ And without donor support, many will go without answers entirely

Your continued generosity ensures that no child is left behind simply because of an insurance denial.

Thank you for standing with these families.

Your generosity is giving children the most powerful tool in rare disease care: a diagnosis.

You are opening the door to treatment, coverage, and hope, and giving parents the peace of knowing they are not alone!

Because of you, children in St. Louis facing rare or undiagnosed conditions are finally getting the answers they need to thrive. Our hope is to continue this impact with your continued generosity, right here in St. Louis and beyond.

The Donut Run is almost here—and we’re praising God for every sponsor, vendor, and sugar-loving soul who’s helping us make impact taste better. October 11th at The Hub in Chesterfield is gonna be sweet, sweaty, and Spirit-filled. Still time to sign up—come run with purpose, cheer with joy, and take part in something bigger than breakfast. 🙌 While there’s too many involved to tag them all, don’t miss all of our incredible friends and companies diving in to help!!

Impact over optics. At Take Part, we promise one thing, our impact will always be greater than our theatrics. We are putting your money where we said we would and we are seeing not just life-changing progress but INDUSTRY changing progress. We sat in a room of the wisest geneticists from all over the country discussing how closing this gap should be the standard of care. They agreed. Until then, we will fight for the dollars needed to make it a reality for every single family we can. No kid should go without the answers they need simply because of a few dollars. Thank you for believing we could do this together - and now? We are after every Children’s hospital IN THE COUNTRY. Let’s go 🔥