KIF1A.ORG
05/20/2026
We’re proud to share that Dr. Dylan Verden, KIF1A.ORG's Chief Science Officer, will be speaking at the 4th Annual Nasal Formulation & Delivery Summit TOMORROW on May 21.
Dylan’s presentation, “Reimagining Rare Disease Treatment Through Intranasal Delivery to Transform Patient Experience,” highlights the importance of innovation, accessibility, and patient-centered design in rare disease research and care. We are honored to have Dylan representing both the KIF1A community and the broader rare disease community on this stage.
05/06/2026
👀 ICYMI: Yesterday, KIF1A.ORG Co-Founder Luke Rosen spoke live on air with Ainsley Earhardt of Fox News 👏
In this interview he discussed his daughter Susannah's battle with KAND, the relentless researchers at Murdoch Children's Research Institute - MCRI working towards treatments, and more!
https://www.foxnews.com/video/6394677774112
Father shares daughter’s rare neurological disorder, partnership with Murdoch research center | Fox News Video KIF1A.org founder Luke Rosen discusses his daughter’s battle with a rare neurological disorder and the Murdoch Children’s Research Institute’s work to advance potential treatments on ‘Fox & Friends.’
🚨 ALERT: A KIF1A Week Science Saturday Exclusive! 🚨
🧬 Click the link below to learn more about recent KIF1A research from Dr. Jayne Aiken in her pursuit to study the diverse mutations behind KAND. As a longstanding member of our KIF1A.ORG Research Network, Dr. Aiken's newest preprint publication dives into topics like heterogeneity, specific KIF1A mutation impact, and more!
🫶 Thank you to KIF1A.ORG Volunteer Roberto Ogelman, PhD for authoring this piece and bringing science communication to our KIF1A Community.
https://www.kif1a.org/blog/science-saturday-studying-the-diverse-mutations-behind-kand/
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