GettingUp.Org, Inc.

https://music.apple.com/us/album/signal-without-a-name-6-beyond-the-static/1885811883?i=1885812002 Rare Disease Music available on every platform, 250 countries. My personal favorite is Signal Without A Name. There are hundreds of songs from 9 artists, blues, rock, country, post rock, pop, and more.

Shadow Dream (1-Clinical Light Diagnosis)

My Summer (2-Vacuum Room
→ Isolation)

Breaking Mirrors (3-Borrowed
Skin → Identity fracture)

In My Bed (4-Resist the Collapse)

Too Late (5.Event Horizon →
Existential brink).wav

Signal Without A Name (6-
Beyond the Static →
Transcendent acceptance)

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Romy AppleMusicPlaylist YouTube

What an incredible weekend for the GettingUp.Org 4th Annual Golf Tournament Fundraiser — “Swing Into Spring 2026” at beautiful Lakewood Oaks Country Club on April 26 & 27.

Together, we raised over $35,000 gross for neuromuscular research and the fight against Inclusion Body Myositis (IBM) and related neuromuscular diseases.

We had an outstanding group of sponsors, an amazing turnout, and a completely full course with 18 teams competing. Congratulations to Ferrellgas for taking 1st place in the tournament — although in truth, everyone involved was a winner this weekend.

The weather turned out absolutely perfect, even after tornado sirens were sounding the night before around the course. Sometimes things just come together.

A huge thank you to Fun House Pizza — Jim & Nick — your pizza was a massive hit with everyone. From hot dogs fresh off the grill delivered to golfers on the course, to Bloody Marys and coffee to start the morning, to a wonderful dinner at The Argyle the evening before, the entire event was filled with friendship, laughter, generosity, and purpose.

Most importantly — thank you to every golfer, sponsor, volunteer, donor, and supporter who helped make this event such a success.

Because of you, we continue moving forward with hope, awareness, advocacy, and research.