Crush Rett Syndrome

Did you know that there are currently two different approaches being studied for a cure? Neurogene is also recruiting for clinical trials to test out their version of a cure. So many exciting possibilities in the very near future.

Aging is difficult for everyone. Many parents are fortunate to have children that can help their parents as they become unable to care for themselves. Parents of children with Rett Syndrome have to take the time to care for themselves so that they can care for the child for as long as possible.

Many children develop scoliosis during their growth spurt years. Rett Syndrome doesn't shield a child from other disorders or diseases. But, many children with Rett Syndrome develop very aggressive scoliosis advancing from just a few degrees of curve to as much as 90 degrees or more in a short period of time. Without correction, this can be fatal.