Rein in Sarcoma

Sarcoma Spotlight: Tom Boardman

When Tom’s grandson was diagnosed with Ewing sarcoma, he knew he couldn’t take away the treatments—but he could take action. “I found RIS, and I said, this is it—I’m going to get involved, for Levi and for others like him.”

As a dedicated RIS volunteer, Tom channels his love for his family into advocacy, education, and support for sarcoma patients everywhere.

We are grateful for Tom and all our volunteers who help bring hope, awareness, and progress toward a cure. 💛

Toni was diagnosed in 2020 with myxoid liposarcoma after months of unexplained pain. She underwent major surgery, chemotherapy, radiation, and continued treatment across multiple locations.

Even during her journey, she devoted herself to supporting others affected by sarcoma and volunteering in the patient community.

Toni has since passed away, and is remembered as part of Sarcoma Awareness Month for her strength, advocacy, and commitment to helping others.

https://ow.ly/koJ350YWCSz

Gain an insider's view of how new sarcoma treatments move from discovery to patients.

Join us on July 17th at 7:00 AM (central) for this engaging virtual event and hear directly from leaders in research, government, industry, and advocacy as they discuss:
• Drug development
• Clinical trials
• Regulatory engagement
• Research funding
• The growing role of patient advocates in shaping the future of sarcoma care

Interactive discussions and small-group sessions will provide practical insights into how advocates can make a meaningful impact for the sarcoma community.

While this event is virtual, Executive Director, Lachelle Semanko will be representing Rein in Sarcoma in person at the U.S. Capitol during Sarcoma Advocacy Weekend July 15 – 18th, meeting with policymakers and joining advocates from across the country to elevate the voices of those affected by sarcoma.

Whether you're a patient, survivor, caregiver, family member, healthcare professional, or advocate, this is an excellent opportunity to learn, connect, and discover how you can help advance sarcoma research and improve patient outcomes.

Register today: https://ow.ly/M75L50ZkJCO

We hope you'll join us as we work together to shape the future of sarcoma care.

Sarcoma Spotlight: Kristine Nachbor, MD

Kristine Nachbor’s contributed greatly to the RIS community as a Jan Maudlin scholar. She is now practicing internal medicine and Ophthalmology.

“I am spreading sarcoma awareness more widely than I could otherwise and helping make real changes,” she shares.

Here about her experience as a scholar: https://www.youtube.com/watch?v=oXUBcJ9eNV0

Twin Cities Supporters: Tomorrow night the I-35W Bridge and Thursday the Lowry Avenue Bridge will be lit yellow in honor of Sarcoma Awareness Month.

If you spot them, snap a photo and share it with us! 📸 Tag us or post your pictures to help spread awareness and show support for the sarcoma community.

https://ow.ly/6uEU50Zlb77

Did You Know? – Sarcoma Awareness Month

Sarcomas make up about 15% of childhood cancers. Raising awareness can help support earlier diagnosis, better care, and more research for kids facing sarcoma.