Emmy's Rustic Run
10/10/2025
Two very cool opportunities to learn more about A-T from the lead doctor at the A-T Clinic at Johns Hopkins and about the A-T research that’s happening from the founder of the Ataxia-Telangiectasia A-T Children's Project!!
Join us this November for a special two-part A-T webinar series that we are co-hosting with the National Ataxia Foundation!
Wednesday, November 5 at 3 PM Eastern / 2 PM Central:
Dr. Howard Lederman (director of the A-T Clinical Center at Johns Hopkins Children's Center) will share insights on the mechanisms of A-T, the diagnostic journey, and what to expect for clinical care.
Monday, November 24 at 12 PM Eastern / 11 AM Central:
Brad Margus (A-T Children’s Project Founder, Volunteer Board Chair and A-T Dad) will discuss how A-T is studied and give an overview of the current state of research and drug development for the disease.
These sessions are a great resource for anyone who wants to learn more about the latest in clinical care and research.
All About A-T: https://us02web.zoom.us/webinar/register/4017564736286/WN_pVttP0n7S9Sq0HAvfvVohw #/registration
Research & Treatment for A-T: https://us02web.zoom.us/webinar/register/6017347297251/WN_QNQhrmspT5egxa8tXdCxTg #/registration
10/06/2025
Special thanks to Jenna Allard and Morris Original LLC for capturing these moments!
09/28/2025
…and that’s a wrap on Emmy’s 9th run! 😅 It was a beautiful day surrounded by amazing people. THANK YOU to all who made it happen. We’ll update with totals soon… but for now, we rest! ❤️
09/26/2025
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