Smith-Lemli-Opitz Foundation

“Kennedi is our happy, sassy and resilient 11 year old girl. She was diagnosed with SLOS a month after she was born, while in the hospital recovering from open heart surgery. I quickly looked for resources to better understand the syndrome and I not only found an amazing community through the Smith-Lemli-Optiz Foundation, but a plethora of information and resources that have helped us face challenges along the way.

Smith-Lemli-Optiz Syndrome is rare and there is no cure. In supporting the foundation, you are supporting many families including their specific and individual journeys, access to the information needed for that journey but also information for professionals to be able to find and contribute.”

Kayla (Kennedi’s mom)

If you would like to support the Smith-Lemli-Opitz Foundation for Giving Hearts Day, our biggest fundraiser of the year, visit:

https://app.givingheartsday.org/ #/charity/1628

🩷❤️🩷

“Bonjour. Mathieu va faire 16 ans le 30 mars. Nous habitons à côté de Bordeaux en France. La maladie SLO est très peu connue en France avec beaucoup moins de cas qu aux États-Unis. Ce groupe nous permet d'être moins seul et nous donne parfois des pistes à travers tous les témoignages, malgré la barrière de la langue. Merci à ce groupe d exister.”

Christine (Mathieu’s maman) 🇫🇷

Si vous souhaitez soutenir la Fondation Smith-Lemli-Opitz pour la Journée Giving Hearts, notre plus grande collecte de fonds de l'année, visitez :

If you would like to support the Smith-Lemli-Opitz Foundation for Giving Hearts Day, our biggest fundraiser of the year, visit:

https://app.givingheartsday.org/ #/charity/1628

🩷❤️🩷