Tinnitus Quest

🔗 https://tinnitusquest.com - Donate. Volunteer. Share your story.

Courtney shares her deeply personal experience of living with tinnitus and why she chose to support Tinnitus Quest.

Every patient story helps others feel less alone, raises awareness, and reminds the world that tinnitus is a condition that deserves far greater attention and research funding.

If you live with tinnitus, we would love to hear your story. Your voice can help drive progress by showing the world the true face of tinnitus and why better treatments are urgently needed.

If you haven't already, please visit our website to learn more about our work and discover how you can help.

Tinnitus Quest is a global patient-led nonprofit. 100% of all online donations go directly to tinnitus research.

Learn more or support our work 👉 https://tinnitusquest.com

Recorded in Copenhagen, this conversation brings together co-founders Hazel and Sven, along with PR Manager Jack, to explore Tinnitus Quest’s mission, the challenges it faces, and the growing momentum behind its work in tinnitus research and advocacy.

The discussion offers an inside look at what it takes to build a patient-led global nonprofit, from fundraising and grant programs to managing outreach and community engagement. It highlights both the progress being made and the ongoing challenges of driving awareness and support for a condition that remains widely misunderstood.

A key theme throughout is the importance of community. Whether through sharing personal stories, engaging with content, or contributing time as a volunteer, even small actions can have a meaningful impact. The conversation emphasizes that progress is not only driven by funding, but by people coming together to support the cause in whatever way they can.

At Tinnitus Quest, we believe that collective effort is what drives real change. By building a global community of patients, supporters, researchers, and advocates, we can help push tinnitus research forward and create better outcomes for those affected.

If you would like to support our work, share your story, or get involved as a volunteer, we would love to hear from you.

Bestselling fantasy author Samantha Shannon joins Tinnitus Quest for a candid conversation about living with tinnitus and the importance of raising awareness around a condition that affects hundreds of millions of people worldwide.

Known for The Bone Season series and The Roots of Chaos, Samantha Shannon is a New York Times and Sunday Times bestselling author and is widely regarded as one of the defining voices in modern fantasy literature.

In this interview, Samantha reflects on her personal experience with tinnitus, shares her perspective on the challenges faced by those living with the condition, and discusses why greater awareness, understanding, and research are so important.

At Tinnitus Quest, we believe patient voices matter. By sharing their stories, people like Samantha help drive the conversation forward and support the push for better treatments and, ultimately, a cure.

Learn more about Tinnitus Quest:
https://tinnitusquest.com

Donate. Volunteer. Share your story.

Our co-founder, Hazel, speaks about her lifelong struggle with misophonia, a condition that overlaps considerably with tinnitus, with an estimated 60% of tinnitus patients also experiencing misophonia.

Misophonia occurs when sounds made by other humans trigger strong emotions like revulsion.

This is different from hyperacusis, which is when everyday sounds seem too loud or painful.

Yet all of these conditions overlap significantly and might share similar mechanisms. So collaboration across the spectrum of hearing sensitivity disorders is crucial.

Do you experience misophonia?

🤝 Small organizations. Big hearts. Even bigger impact.

We have some truly exciting news to share. Tinnitus Quest has partnered with Hyperacusis Research Ltd., and together we are ready to push hearing health research further than either of us could alone.

Hyperacusis Research will allocate funds for a grant of up to $100,000, which Tinnitus Quest will help administer.

🔬 We are funding breakthrough science on hyperacusis, a condition of extreme sound sensitivity that shares deep biological roots with tinnitus. Millions of people struggle every day with sounds that most of us never think twice about. They deserve answers, and we are committed to helping find them.

🚀 Grant applications are now open. If you are a researcher with fresh ideas and the drive to make a real difference in people's lives, we would love to hear from you.

💙 Two conditions. Two passionate nonprofits. One shared belief: that good science, properly funded, can change lives.

👉 tinnitusquest.com
👉 hyperacusisresearch.org

🔥 Silence starts with science. Tinnitus Quest is now accepting applications for our next round of research grants.

Are you a researcher with a bold idea that could move tinnitus science forward? Applications are open until July 15.

Are you a patient who knows a researcher, clinician, or lab that should hear about this? Please share this with them.

Our first grant cycle helped launch a pioneering project. Now, we’re looking for the next wave of ambitious, out-of-the-box ideas that could bring us closer to real treatments, and ultimately, silence.

Let’s make round two even stronger.

We’ll keep you posted. ❤️

👉 https://tinnitusquest.com/research/grants-2026/

Last year’s Tinnitus Hackathon was the first of its kind. This October, we’ll once again bring together global leaders in research and funding.

Open debate. Real challenges. No easy answers.

New ideas. New collaborations. Building momentum together.

♥️ Follow us and consider supporting our work to accelerate tinnitus research.

👉 https://tinnitusquest.com

In Copenhagen, a global hub for sound innovation, Tinnitus Quest brought together leaders from across the audio sector to discuss hearing health, tinnitus, technology, and the future of collaboration.

This conversation features:
• Søren Majlund, Senior Commercial Executive at HARMAN International
• Tanveer Bhuiyan, PhD, Senior Engineer and Researcher at HARMAN International
• Jeppe Lindegaard, Head of Branding, Strategy and Events at Danish Sound Cluster

Topics include:
• Living with tinnitus from a personal perspective
• Why hearing health matters to the audio industry
• Innovation in sensors, AI, and wearable technology
• Brain-based markers linked to tinnitus research
• Why tinnitus remains underfunded and misunderstood
• The power of collaboration between research, industry, and patient communities

This episode highlights an important shift: tinnitus is no longer a niche conversation. It is becoming a global health and innovation priority.

If you believe research should move faster, awareness should grow louder, and collaboration should go deeper, we invite you to follow the mission of Tinnitus Quest.

🌐 https://tinnitusquest.com

Tinnitus Quest was born from the tinnitus community. It was founded by people with tinnitus who were tired of waiting for research to move in the right direction.

The support of this community is at the heart of everything we do.

In Q1, we reached a new milestone: $25,000 in donations through our website.

More than 1,000 people contributed, 1,014 to be exact. The average donation was $25.

That is the power of numbers.

To those 1,014 people, thank you. We do this work for you and with you.

If we stand together, we CAN make a change.

All donations made through our website go directly into our Research Fund. That is how we fund research grants. Our other activities are covered through separate income streams.

Join the quiet revolution:

👉 https://tinnitusquest.com

Dirk Zandvliet of Gallowstreet speaks openly about the wider impact of tinnitus, not just on individuals, but on creativity, productivity, and how we value health in today’s world.

Gallowstreet are a leading Dutch brass band, known for their high-energy sound and international touring across major festivals and venues.

In this video for Tinnitus Quest, Dirk reflects on a difficult reality: when conditions like tinnitus are not properly addressed, the consequences extend far beyond the individual.

And yet, it remains under-recognised and underfunded.

At Tinnitus Quest, we are working to change that by supporting research and amplifying the voices of those affected.

For more information 👉 https://tinnitusquest.com

❤️ Donate, volunteer, or share your story.