US MEF2C Foundation
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The US MEF2C Foundation extends our most sincere thanks to Tom Westermeyer, not only for his fundraising from sourdough baked goods, but also for sharing this touching tribute to his grandaughter, Harper, and a behind the scenes look at the sourdough baking. We also warmly thank Harper's father, Luke Leonard, for making the video. The support from both the Westermeyer family and the Leonard family means the world to us. 💙 https://www.facebook.com/groups/2876999492511391
07/06/2026
🧬Genetic Testing Action Day is on July 25, 2026.🧬
The US MEF2C Foundation is joining the movement to empower individuals to access genetic testing and unlock understanding, community, and a way forward.
You can help by sharing this post with your family, friends, and medical professionals to spread awareness about genetic testing.
🔬Unexplained symptoms and don’t know where to begin? Start with genetic testing.
Some common reasons why individuals may be referred for a genetic evaluation include:
· Developmental delays
· Intellectual disability
· Autism Spectrum Disorder
· Unusual growth
· Physical differences noted at birth
· Abnormal labs or imaging studies
Learn more at https://www.startgenetic.org
07/02/2026
🌞The May-June edition of the Beacon is here for summertime reading!
This edition includes updates and new information on topics such as:
🩸The Longitudinal Natural History Study –
*NEW* Blood Biomarker Investigations
Next round October 2027
📊Simons Searchlight Quarterly Report
👨🏾💼In case you missed it, the January 2026 Family Research Conference video
📅Recent Events – MEF2C Awareness Day, PT Resource Connect, Sibling Connect, Million Dollar Bike Ride, Meet Up in Boston
🤾🏼♀️Upcoming Events – TheOlson’s 4th Annual Sand Volleyball Tournament
And more! https://usmef2c.click/BeaconJune2026
06/12/2026
🤩Thank you Stella Jeong for sharing your experience as a DPT with the MEF2C Community! We were thrilled to take part in an interactive discussion on hypotonia, a topic so relevant for many in our community.
📽For those unable to attend, please find the recording in the link or QR Code.
https://www.youtube.com/watch?v=Gwvw49fHoTI
06/11/2026
🚴♀️Support Team MEF2C United for the Million Dollar Bike Ride 🚴
It's not too late to be part of something incredible! On Saturday, June 13th, we're riding in Philadelphia to support groundbreaking research for MEF2C-related disorders. Every dollar raised goes directly to the US MEF2C Foundation! 💙
📌Learn More & Get Involved https://charity.pledgeit.org/MillionDollarBikeRide/teams/MEF2C
👉 Million Dollar Bike Ride Website: https://www.milliondollarbikeride.org
📱Follow along and tag
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Let’s pedal toward progress together! 🏆💙
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8 The Green, Suite 8114
Dover, DE
19901
