Hacking Hypermobility Podcast

Attention Bendy Baddies: Here is an opportunity to contribute your DNA testing to the medical researchers trying to better understand Hypermobile Ehlers-Danlos Syndrome!

Did you know the podcast crew used full genome testing with Sequencing.com to help get our family members diagnosed! Link in the comments to anonymously send your data from Sequencing.com to Norris Lab at MUSC!

Throwback picture to the 2024 global conference in Philadelphia for visibility

It was a paper shorts fashion show at Shelli Sits Weirdly’s combo pre & post op appointment today. Disappointed there are no pockets 🤣

The left hip is all healed up ✅ and everything is all set for distal clavicle excision on December 1 ✨

STATEMENT FROM THE AUTISM SOCIETY OF MARYLAND REGARDING
TYLENOL AND VITAMIN FOLATE
September 22, 2025

Today, the U.S. Department of Health and Human Services
announced results of its autism research initiative, claiming new evidence on “causes”
of autism and treatment. The Autism Society of Maryland appreciates the
expenditure of additional resources this year for autism research, but we
caution our community not to act on these proclamations before they are
validated more broadly. Too often, families have been led astray by therapies
based on thin or misleading science.

There’s one thing for sure. The cure that the Autism
community is looking for is acceptance as full citizens who deserve equal
access to education, housing and health care. If the Trump Administration is
serious in its commitment to autism, they’ll dedicate the same resources to
both research and delivering these services.

For a complete statement and resources, visithttps://autismsocietymd.org/wp-content/uploads/2025/09/AUSOM-Statement-on-Tylenol-and-Vitamin-Folate-9.22.25.pdf

Questions? Contact [email protected] or 410-290-3466.

What’s up bruiser!

Shelli Sits Weirdly’s veins were not cooperating yesterday at her pre-anesthesia testing ahead of surgery next week. After a failed attempt from Shelli’s left arm (collapsed), she urged the nurse to grab the butterfly and just take it from her hand.

This method never fails. Yes, it leaves gross bruises. Yes, it takes a bit longer to draw. But if it’s three tubes or less, this is the way for her!

That’s weird, I never took Tylenol #helpimalive#

Orthopedic surgery #5 is in the works…

Another PT fail for Shelli means another surgical fix - what was your record for most surgeries in a twelve month period,
Bryan?

TikTok · ShelliSitsWeirdly 123 likes, 6 comments. “No amount of PT is ever going to solve this problem Hypermobility”

New paper! 📄

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