Team Justin

Happy Saturday from our man of leisure!!! He’s chilling waiting on his 2nd helping of scrambled eggs. I asked him to smile and I got this goofy look!!!
Y’all have a great day!!! Stay cool!!!

As always, thank you for your continued prayers!!!
Big 🤗,
Mommy T. & Ju Man

Good morning, TJers!!! Sorry I haven’t updated in awhile. We’ve been on a roller coaster, me emotionally and Ju Man physically. The gran mal seizures have increased, therefore, Dr. Taylor went ahead an increased one of his seizure meds. The game plan was to wait until we got the genetic test results before making any medication changes. Welp, Ju Man had other plans 😂!!! Seriously, I’m ticking all the boxes to prevent seizures, but this disease has a mind of its own. And that’s when I question myself, did I let him swing too long, was the bath water too cold or too hot, the revving up of a loud car, did he eat/drink too much or too little… or my favorite: did he get too excited because????
I will say Ju Man is having fewer meltdowns and he’s responding well to prompts in his daily living skills.
I will keep you updated on the medicine change. I’m not very hopeful, nature of living this rodeo for 25 years. His brain will calm down once the increase takes effect, then wham!!! The seizures will increase more. That’s called the “honeymoon period”. And if we do see an improvement with the seizure decrease then we’ll probably increase the Med more. It’s all a balancing act!!! This medicine world is a vicious cycle!!! All I can do is pray for my Ju Man, pray for guidance of Dr. Taylor and team and pray that I am making the best decisions for Justin.

As always, thank you for your continued prayers and support!!!
Big 🤗,
Mommy T & Ju Man

I told him to smile!!! This is huge!!!!!!!!!
Whenever, I pull out my phone to take a picture he will bury his head in my shoulder. Y’all celebrate with me!!! Besides, you can’t help but laugh when you look at that huge smile!!!

And yes, he still wearing his Hawaiian shirt. He’s had it on since Friday and won’t take it off. He’s like Mommy “you shaved me and now that I’m cooler I gotta look the part.” 😂

Have a great Sunday!!!

As always, thank you for your continued support and prayers for my Ju Man!!!

Big 🤗,
Mommy T. & Ju Man

Good morning, please send prayers for Ju Man today. He started having small seizures yesterday, so I made him wear his helmet. This morning, he’s not any better and I’ve already given him the rescue med. We’re sitting here this morning, with our favorite things, waiting and watching. I can’t hold his hand when he’s in this state. His muscles are extremely tight and if we’re holding hands & he has a seizure then I could get hurt. That happened yesterday when the big seizure monster visited. That’s when my Mommy T. ❤️ hurts. I have to think about my safety first. If I get hurt then I can’t properly take care of him. It’s the same way going up and down the stairs. I make sure, if he was to fall, then he doesn’t take me down with him.
As always, thank you for your continued prayers and support of my Ju Man!!!
Big 🤗,
Mommy T.