My DMD Hero

💙 On this Good Friday—a day that reminds us of both sacrifice and hope—we’re sharing something deeply meaningful from our hearts.

Everything has a season, and the season for My DMD Hero has come to an end. After five powerful years, we are beginning the process of closing down My DMD Hero.

Thanks to you—our donors, sponsors, volunteers, and friends—we’ve raised over $419,000 since 2019. And by the time we finish this journey, we will have given away $341,290.67 directly to Duchenne families—over 81% of every dollar. This is something to be proud of!

We’ll be winding things down over the next couple of months as we complete a few final projects for families currently receiving support. Every dollar is going out with purpose, just like it always has.

From ramps to lifts, wheelchairs to pool lifts...—your support helped meet the needs of Duchenne families who needed it most.

We’ll share more in the days ahead. But today, we simply want to say:

Thank you. Together we made a difference.

If you have any questions please email [email protected]

🔬 Did you know? About 1/3 of Duchenne Muscular Dystrophy (DMD) cases are caused by spontaneous mutations? That means the mutation occurs without any family history of the disease.

In DMD, a genetic mutation in the dystrophin gene causes muscles to weaken over time. Most cases are inherited from a mother who carries the mutated gene on her X chromosome. However, in 1/3 of cases, there is no prior family history, and the mutation happens for the first time in the affected child. This is called a de novo mutation—a spontaneous genetic change that occurs in the egg or s***m, or early in fetal development.

Can you get DMD from someone else? ❓
No, DMD is not contagious. It’s a genetic disorder, which means it is inherited or occurs due to a random mutation. A child cannot “catch” DMD from another person, and it doesn’t develop from environmental factors or lifestyle choices.

Understanding how DMD happens is a step toward better awareness and support for families who may be facing this diagnosis, whether or not there’s a family history.

➡️ Share this to help spread awareness and educate others about DMD!