IIH Champ Foundation
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05/18/2026
Celebrating our 3 years anniversary💙💚
3 years ago, IIH Champ Foundation started with pain, purpose, and a vision to make sure nobody facing Idiopathic Intracranial Hypertension felt alone.
I am Tanya the founder & CEO of the IIH Champ Foundation and I was diagnosed in 2017.
I felt alone and scared and eventually decided to spread awareness because of this rare neurological condition is not talked about enough.
Today, we celebrate 3 years of advocacy, awareness, education, community, and impact.
From surgeries... to hard days... to victories...
to voices being heard...
Thank you to every supporter, patient, volunteer, donor, listener, and person who believed in this mission.
We're just getting started.💙💚
Just a quick Q&A about living with IIH💙💚
04/23/2026
Episode 6!!!!
https://open.spotify.com/show/7xzJAQn9zA97I0sD1xtrGx
Living with an invisible rare condition (IH) has been life altering but I'm ok.
No sympathy needed just awareness.
Some days are better than others but l have learned to live with IIH.
I am grateful for all of the support that I receive.
I'm not 100% health wise but I will continue to show up!
No one fights alone!!!
What if everyday was a flare day living with IIH?
Someone asked this question….
If you’re having a flare day give yourself grace…..
04/08/2026
Episode 5!!!!!!!!
If you’re living with IIH…. I see you💙💚
You are not alone!!!!
03/26/2026
I am excited to share that I am an alumni of the Milestone Circles Program at the Nasdaq Entrepreneurial Center! More exciting news is that my headshot was featured today on the Nasdaq Marketsite Tower in Times Square !!!!
Completing a business program while achieving measurable growth in my business, including increased revenue and expanded opportunities.
This journey hasn’t just been about business it’s been about purpose.
Through my work with the IIH Champ Foundation and my podcast Voices of IIH, I’ve remained committed to raising awareness, building community, and creating space for real stories to be heard.
Everything I’m building is bigger than me — it’s for every person navigating IIH and needing to feel seen, heard, and supported.
This is just the beginning 💙💚
Episode 4: Voices of IIH
Thanks to this beautiful woman Tareca for sharing her story
03/11/2026
Voices of IIH Episode 3 is live. I’m so grateful for this young lady for taking the time out to share her story.
If you would like to share your story or have questions I would love to hear from you.
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Chicago, IL
