Greater Washington DC Scleroderma Foundation

What does Scleroderma Awareness Month really mean?

Is it just wearing teal? Posting on social media? Attending an event?

For advocate Monika "Mighty Mo" Hilton, awareness means much more. It means sharing your story, educating others, asking for support, raising funds, building community, and making sure people living with scleroderma are seen and heard.

In our newest blog, Mo shares her no-nonsense perspective on why awareness matters, how she secured multiple proclamations recognizing June as Scleroderma Awareness Month, and simple ways YOU can get involved.

https://www.stopscleroderma.org/post/can-t-stop-won-t-stop-mighty-mo-s-mission-for-scleroderma-awareness-month

Hey DC! Feeling alone with scleroderma is tough, but you don’t have to face it by yourself. That’s exactly what our Greater Washington DC support group is all about. Join us TONIGHT at 6 pm EST for a warm, uplifting meeting where we’ll share experiences, celebrate victories, tackle challenges together, and talk about how we can make an impact during June Scleroderma Awareness Month. Whether you want to meet other warriors nearby, learn about advocacy, share your ideas, or just listen and feel understood, there is a place for you here. The more of us who show up, the stronger and more welcoming our community becomes. We can’t wait to see you tonight and sign up at www.stopscleroderma.org/support.

We’re in Washington, D.C., with the Coalition of Skin Diseases to advocate for meaningful change for the skin disease community. Scleroderma advocates traveled from across the country to participate in the Coalition of Skin Diseases Capitol Hill Day. After attending a full day of training and connection on Monday, the advocates hit the hill today to:

• Meet with congressional leaders
• Rally on Capitol Hill
• Push for real solutions for patients and families

Our goals:
• Urge Congress to pass the and
• Call for robust to support life-saving skin disease research
• Encourage Members of Congress to join the Congressional Skin Disease Caucus to address the growing health, economic, and social burdens of dermatologic conditions

Join us by taking action! Email your Senators and Representative using this form here: https://skincoalition.org/take-action/ #/12