Lowe Syndrome Association, Inc.

July is Disability Pride Month!

This month, we celebrate the strength, resilience, and unique experiences of people with disabilities. Disability Pride is about embracing every individual's identity, advocating for inclusion, and recognizing that our differences make our community stronger.

At the Lowe Syndrome Association, we're proud to celebrate our incredible families and individuals living with Lowe syndrome and all those in the disability community.

Different, not less. Every voice matters. Every story belongs.

Every Lowe syndrome journey is unique, and every story matters. 💙

From diagnosis to milestones, challenges to victories, your family's experience can inspire, encourage, and support others in our community.

We'd love to hear your story! Share a little (or a lot) about your Lowe syndrome journey:
• When was your loved one diagnosed?
• What has your family learned along the way?
• What advice would you give to someone just beginning this journey?

If you'd like to share your story with the community, feel free to submit it to [email protected]. Your journey may be exactly what another family needs to hear. 💙

This community is more than just a space online 💙

It is families who understand
People who show up without being asked
Support that is felt, even from miles away

It is a reminder that no one has to walk this journey alone

We are stronger together!

Save the Date! 🌴

We're excited to announce the dates for the 19th International Lowe Syndrome Association Conference!

📍 Long Beach, California
📅 June 25–27, 2027

Join us for a weekend of connection, learning, support, and community as we come together with families, caregivers, individuals with Lowe syndrome, medical professionals, and advocates from across the country.

More details, including registration information, hotel accommodations, and conference programming, will be shared in the future. For now, mark your calendars and start making plans to join us in Long Beach! We can't wait to see you there💙