A Not So Typical World

Why the heck is it easier to purchase an assault rifle than it is to get my sons controlled med transferred to another pharmacy when that med is out of stock?!?!?

I was told if there were any issues to go to the ER since my doctors office is closed on the weekends.

Um..hello?!? They won’t give him the med he needs at the emergency room!

And no we don’t go to a pharmacy that gives us what we need in emergency. 

So I guess he won’t be at school on Monday.

I was really hoping for a good end to Spring Break.

I wish people knew more about how hard it is to find something for our children with different abilities to do outside of therapy, school or our homes.

Today I’m hyper-focused on the limited or non
existent amount of organized activities that are available for my son with autism.

When there is an adaptive activity that’s available you have got to jump on it quickly because it’s going to fill up fast but sometimes I can’t afford it financially to sign up immediately.

Or I can afford it but it’s to far away.

Or sadly it becomes unavailable because special needs parents are sometimes too scared to sign up because it’s easier to keep our children home and not be a burden to other people.

Because we are reminded everyday how our children are difficult.

I get frustrated hearing friends of mine with typical children saying they are overwhelmed because of the amount of activities available for their children and then they don’t know what to pick.

I’m not frustrated with those people individually. I’m frustrated that I’ve got all the options in the world for my daughter to explore anything she wants, but barely any for my son.

So I definitely see both sides to this because my children are in two different worlds.

The typical world and…the not-so-typical world.