N-Lorem Foundation
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06/20/2026
Facioscapulohumeral Muscular Dystrophy (FSHD) is a rare genetic condition that causes progressive muscle weakness, often affecting the face, shoulders, and upper arms.
On World FSHD Day, we recognize the individuals and families living with FSHD and the researchers, clinicians, and advocates working to advance understanding and potential treatments.
A powerful conversation on ALS, genetics, and personalized medicine.
In this episode of the n-Lorem Patient Empowerment Podcast, n-Lorem patient Bill O’Sullivan and Dr. Neil Shneider discuss CHCHD10-related ALS, diagnosis, and early experience with a personalized A*O therapy.
Now streaming: https://youtu.be/TtLH3LpfJvs
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