Shane Against DIPG

SHANE UPDATE DAY 2

Shane is now officially on both medicines he needs for the ANP treatment. He will now just up the dose on both meds everyday until he gets one full bag of each medicine everyday. He’s handling the treatment super well so far! Today he was able to go walk the mall(The Galleria) with me and go to one of our favorite restaurants (Pappadeaux’s) for dinner!! 🥰❤️

Prayer Warriors:
Pray Shane keeps handling these meds with no problems and so we can up the dose and get full treatment ASAP
Pray Texas Oncology will work with the doctors here and help us get Shane the targeted therapy they’re also recommending for him.
Pray this medicine works and the tumor completely disappears!!
Pray we can come home fully trained by Saturday because we miss our babies deeply!!
Pray also that we can come up with the rest of this funding for his treatment!

PS: I bought a man purse. “satchel” 😂 I got tired of toting around the lunch box all day and if I have 8 months of this then at least I can be stylin ha. So if you see me with my “man purse” just know it’s holding meds.

More on the ANP and targeted therapy.
ANP is in 2 meds called AS2 and A10. Not real sure what those mean yet. The targeted therapies they want me on in a few weeks are Avastin, Pazopanib, Dasatinib, and Everolimus. No idea what those are. Except Avastin is IV where the other 3 are oral.

We love you all. Thanks for the texts, calls, donations and prayers. 💕💕

As always please donate, pray, and share!!
https://gofund.me/553b6de7

SHANE UPDATE DAY 1

It’s been a busy and hectic day here in Houston. First we met with the doctor team at Burzynski and discovered that Shane’s tumor now has some activity. Then he got his port put in and got to have some yummy pizza from 1000 Degrees Pizza and Freebirds burritos. Finally he started the first of two daily medicines he will now be on administered by his pumps. He’s handling the medicine super well. Now due to this tumor activity he will need three other medicines for treatment and they are quite costly. One is through an IV and the other two are oral medications. Prayer Warriors we need you now more than ever. Pray we can get the funds for all of this treatment. Pray the treatment works and kills and stops the tumor that is active. Pray the treatment kills and shrinks the inactive part of the tumor. Pray Shane’s body can handle all this medicine and we can learn how to use these pumps quickly and get home to our babies. Pray for God to comfort us and ease the anxiety and stress that comes with all of this. We love you all. We have gotten tons of texts, calls, and messages and your support means the world to us. We will get back to you all as soon as we can! 💖

As always share, pray and give!

https://gofund.me/553b6de7

What does an MRI round look like? This is an IV used for contrast for the imaging. I’ll get images first without the contrast then images with the contrast. Once the scans start it’s usually 30 - 45 min. Then all done. I’ve had around 20 or so MRI’s in the past 5 years. Routine at this point.

This is what ANP is according to The Burzynski Clinic.