Loving Loic

Because some rare diseases have similar patterns, or manifest in similar ways, research or treatment for one can have implications for others. This is how the world of rare diseases become more common than previously imagined.

Full interview with Deborah Requesens from the Orphan Disease Center at Penn Medicine is available on the Loving Loic YouTube channel.

⛳️ There’s still time to join us at the Loving Loic Foundation Golf Classic!

We have just a couple of team spots remaining for next Saturday’s tournament, and we’d love to have you on the course with us. Whether you’re playing to support a great cause, enjoy a day of golf, or both, this is a fun event you won’t want to miss.

Every registration helps us continue funding groundbreaking research to bring a gene therapy treatment to children living with PKAN, including our son, Loic.

Register your team today before the remaining spots are gone:

🔗 Link in bio or visit https://www.lovingloic.org/3rd-annual-golf-classic

Thank you to all of our players, sponsors, and supporters for helping us drive hope forward. Special thank you to our Eagle and Birdie sponsors: Cotner Ryan Blackford, First Interstate Bank, Schulte Law Firm, Ponderosa Dental and Holloway & Hulling!

We can’t wait to see you on the course!