Blooming Rose Foundation

Fourth of July celebration Porco style.


Red Lodge Creek Plateau
14 miles, round trip
Elevation gain 4,000 ft in 2 miles.
Brutally amazing.

Reposted from

Even before our entire country and the world rose up with street demonstrations and so many other brave forms of direct action in affirmation of Black lives, we know that many of you in the CF community shouldered the impossible burden of protesting your own system genocide while standing up for our Black peers. We see that labor and we center it and more importantly, we honor it with action old and new. .
We are so honored to have the grace and beauty of Raeshaun, as our newest facilitator of “Inhale Melanin, Exhale Power.” .
Starting Wednesday, July 1st at 5MT/7ET.

Sign up here: https://form.jotform.com/attainhealth/support-group-intake-form

If you have a child with CF who is 10-18 years old- we would be so grateful for your insights as we, (Attain Health) develop a "youth empowerment" program. It should only take 2-5 mins.
And please share! :)
Thanks,
Kat

Can you spare a few moments to take my survey? Please take the survey titled "Attain Health Youth Empowerment Program Survey (For Caregivers of Children who are ages 10+)". Your feedback is important!

If you have a teen with CF, please check this out!

Counseling Overview Gillian Mocek is a Masters student at Spalding University's School of Social Work. She and her husband, Christian, raise their lively one-year-old son, Simon, in New Albany, Indiana. She lives with cystic fibrosis and is thrilled to be a part of the Attain Health team and work with the CF community....

Hello CF community! We received funding to expand our services to caregivers! Check it out and make an appointment if it resonates with you.

Attain Health is offering free health coaching sessions for individuals living with CF AND parents/caregivers!
If you are looking to enhance your health or feel more empowered in your child's care, schedule an appt here:
calendly.com/katquinnporco

Hello CF Friends! Anyone in the NYC area and want to be involved in a focus group!?
Details:
5 caregivers total whose child/loved one has one or two copies of fdel508 mutation
90 minute focus group
Being held In person at 200 Varick Street, New York, NY 4th floor
Thursday, 6/8 at 7pm-8:30
Food will be provided
$150 honoraria

I am so excited to be involved with a new initiative the CFF has launched through the Patient and Family Research Advisory Committee, the program is called . The CFF has a wealth of information in the Patient Data Registry- over 40 years of data! They want to know what you as a patient, caregiver or professional in the community want to know about CF. Please join in this exciting movement toward patient-driven research!
Plus, you get to watch this super cute video of Maylie demonstrating a question.

Maylie-InsightCF.mp4 Shared with Dropbox