Massachusetts Rare Action Network
01/10/2026
CNBC launches CNBC Cures to help 30 million Americans with rare diseases CNBC Cures aims to raise awareness of rare diseases. Led by "Squawk Box" anchor Becky Quick, CNBC Cures was inspired by her family's own rare disease journey.
02/25/2025
Hi Everyone!! Happy Monday before Rare Disease Day!!! Hope to see many of you on Saturday. As a reminder here is more information about the event and dont hesitate to reach out with any questions! Wear your stripes!
Do you have any plans for Rare disease day this year? Comment below what you are planning to do or events you may be interested in!
Did you know Rare disease day is not only in the United States? Learn more about Rare disease day across the world at this link! https://www.rarediseaseday.org/
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