Boston Bleeding Disorders Center

Reflecting back to World Federation of Hemophilia's , from moderating, to presenting, to connecting and networking with different colleagues, Amanda Stahl had a few takeaways.

🩸Gained a wider international network of psychosocial colleagues to consult, collaborate, and learn from.
🩸World wide equity considerations — considering what care looks like in conflict, displacement, and resource-limited settings.
🩸Appreciation that the psychosocial role is increasingly recognized as being central to comprehensive bleeding disorders care worldwide.

Let’s keep the conversation going and continue pushing this work forward—together.

Every year, The Hemophilia Alliance hosts a meeting for new HTC staff that focuses on understanding the bleeding disorders community and 340B.

Mishon, our financial analyst, attended this year and speaking on his experience, "I really enjoyed the opportunity to learn more about these broader issues, especially around improving communication and understanding how policies and procedures affect our work. It was also great to meet and have meaningful conversations with people from HTCs across the country, sharing challenges we face and learning from one another’s experiences."

This is a great opportunity to network and highlight services that are available through the Hemophilia Alliance.

Today, April 17th, the bleeding disorders community globally come together to advocate for all inherited bleeding disorders. The first step to receiving treatment and care is a DIAGNOSIS!
To learn more about World Hemophilia Day and how to get involved, visit wfh.org/whd

In a couple of days, Amanda Stahl will be joining many more at the World Federation of Hemophilia's - "I’m really looking forward to the WFH Congress in Kuala Lumpur this April. I’m especially excited to connect with colleagues from around the world and learn how others are supporting patients and families living with bleeding disorders. I’m also honored to be presenting on “Women and Being Heard,” focusing on global disparities in women’s healthcare, and to be part of the ongoing push for greater inclusion of women in healthcare worldwide." -- Amanda Stahl, MSW, LICSW