FSGS and Nephrotic Syndrome Research

African Americans are at disproportionate risk for non-diabetic kidney disease and FSGS in particular. Most of this disparity is due to two variants in the APOL1 gene. These variants confer resistance to trypanosomiasis, a serious disease in some African regions, and as such they have raised in frequency in Africa. Here at the Laboratory of Inherited Kidney Disease we are further investigating the biology that leads this APOL1-related form of kidney disease. If you are African American affected by non-diabetic kidney disease or have a relative with disease and you want to help with our research studies, we would like to hear from you. Feel free to contact us at [email protected]

Hello there. We are looking for a volunteer with NPHS1 associated kidney concerns to give a one time blood sample. If you or someone you know is interested, please email our research coordinator, Andrea at [email protected]. Thanks so much!

"Nephrotic.... What?!" Yes, the name can be intimidating at first, but don't let Nephrotic Syndrome confuse you. It's not a disease, but rather an umbrella term for the collection of signs and symptoms that occur when the kidney filters leak protein into the urine. Learn more below!

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Today kicks off Rare Disease Week! Join us for the next 7 days as we push out informative information on your rare kidney disease.

The first thing we want to make sure you're aware of... our friends and colleagues at the National Center for Advancing Translational Sciences and The NIH Clinical Center are co-sponsoring the 10th this Friday, February 28th.

Hear more about the latest collaborative research for rare diseases at the FREE event. Register now for Rare Disease Day at NIH at https://go.usa.gov/xdrgg

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