FDMAS Alliance
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06/23/2026
Reminder: Always Wear Sunscreen -- FD/MAS Alliance's Monthly Community Meet-Up is TOMORROW and will start at 7pm ET (11:00 pm GMT). This is 30 minutes earlier than we usually do these meet-ups. Will you be there?
Nikki (FD/MAS Alliance's VP 🧡🦓 and member) and William Romero (World traveler and fellow member) will share their insights, tips, and experiences on TRAVELING with and ask you about yours!
Register for free and join the conversation! https://fdmasalliance.org/get-involved/fd-mas-alliance-monthly-community-meet-up/
Here's the truth: $10 donations will not cure FD/MAS, but they can demonstrate that the power of community. In rare disease, small actions and community organizing become a powerful way to demonstrate that the NEED is there.
That's why # of donors can be AS IMPORTANT as $ raised. It's a rare disease numbers game that's built on dedicated community champions showing up and saying this is IMPORTANT.
has a great track record of making a BIG impact in and research. Let's keep showing up until the research reaches our lives.
Will you give to support Team FD/MAS? Every donation counts! WWW.tinyurl.com/teamfdmas2026
05/24/2026
Have you ever wondered if Team FD/MAS is actually supporting research progress?
At the FD/MAS Research Priorities Workshop, researchers shared their ongoing work on understanding and treating --their optimism in future treatments was palpable, and so many of them cited the seed grants, organized meetings, and collaboration opportunities that Team FD/aMAS and the FD/MAS Alliance provided as CRITICAL.
We have a track record of BIG wins, and after the Research Priorities Workshop, we have a road map of where we want to head next.
Your gift to Team FD/MAS this year is a vote of confidence in our community priorities and an investment in the work to bring those priorities to life. www.tinyurl.com/teamfdmas2026
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FD/MAS Alliance, 7315 Wisconsin Avenue Suite 400 W PMB 103
Bethesda, MD
20814
