Team Addison USA

Today May 29th marks International Addison’s Disease Day! Team Addison USA promotes Awareness for all those affected by this condition and living with. To provide knowledge & the ability to learn to immediately recognize the signs of an adrenal crisis to expedite active treatment or prevent and avoid a crisis from occurring at all. To ultimately save lives, so an Addisonian, can live their absolute best life and enjoy their life. This is our universal goal within our global network and community.. Team Addison USA

Living with Addison’s Disease you must always take your steroids daily throughout the 24/7 - 365 days a year because you are steroid dependent for life. You must replace the hormone’s that don’t exist cortisol & aldosterone.. One must always prepare & adjust when necessary.. With medication or rest or fluids or salt intake and proper nutrition.. There is a lot invisible to others that must be taken in consideration when planning your day or going to work or social events or on vacation.. You need to trust how you feel and follow up with what’s best for you.. Take the best care of yourself when well or not to prevent further issues with a potential adrenal crisis.. Which is life threatening. This is something you want to avoid happening or take care of immediately with immediate emergency care and getting IV fluids and Solucortef IV and injection prior if possible… Yes, Addison’s Disease is rare but with Awareness and community and getting proper care and preparation always you can live your best life and fulfill your dreams… Team Addison USA is united with a global community & network (Team Addison Global) to promote Awareness for all affected by Addison’s Disease…

Living With Addison’s Disease — The Work No One Sees

Living with Addison’s disease is not something you can switch off.
It doesn’t pause when life gets busy, and it doesn’t wait for the “right moment.”
It is a constant, quiet responsibility — one that shapes every day, every plan, every decision.

Most of the work happens behind the scenes.
It’s not dramatic.
It’s not visible.
But it is real.

A body that needs support — every single day
When your adrenal glands stop producing the hormones that keep you alive, you don’t get the luxury of forgetting.
You have to replace what the body can’t make.
You have to think ahead.
You have to stay aware.

It means waking up and immediately taking responsibility for something your body can no longer regulate on its own.
It means managing energy, blood pressure, stress reactions, and the delicate balance that keeps everything functioning.

And you do it quietly, because it’s simply part of life now.

The invisible discipline
People often see the outside — the work, the travels, the projects, the everyday routines.
What they don’t see is the structure behind it:

- medication that must be taken at exact times
- stress that must be controlled before it spirals
- fatigue that doesn’t disappear with sleep
- the constant awareness of symptoms that can shift quickly
- the need to plan for situations others never think about

This isn’t about being strong.
It’s about being prepared.
It’s about doing the work that keeps you safe.

Not shared for sympathy — shared for understanding
Talking about Addison’s disease is not about seeking praise or attention.
It’s about making the invisible a little more visible.

It’s about helping others understand why someone with Addison’s might need to rest, adjust plans, carry emergency medication, or be extra careful with stress and illness.

It’s about giving a voice to a condition that is rare, serious, and often misunderstood.

And it’s about letting others with Addison’s know that they are not alone in the daily work that no one else sees.

A community of quiet fighters
There are many of us who live with Addison’s disease.
Many who:

- always carry medication
- always think one step ahead
- always listen to their body
- always balance between living fully and staying safe
- always do the invisible work that keeps them going

This is not weakness.
This is not drama.
This is reality.

And acknowledging it doesn’t make anyone “brave” or “heroic.”
It simply makes the truth visible.

We move forward — together
Addison’s disease may be rare, but the people living with it are everywhere.
Working.
Creating.
Travelling.
Raising families.
Chasing dreams.
Building lives that are full, meaningful, and rich — even if every day requires more planning, more awareness, and more effort than most people will ever know.

This message is for all of us.
For everyone who does the work quietly.
For everyone who keeps going even on the hard days.
For everyone who wants to live a big life, even with a small adrenal function.

We see each other.
We understand each other.
And we move forward — together.

We lost another precious beautiful soul, yesterday. A young man of only 26 years old to Addison’s Disease. He lived with his partner Matt in the UK.. His name was Ewan Bowers. He succumbed quickly to an adrenal crisis, which put him in to a fatal, cardiac arrest. Paramedics and emergency personnel worked on him for over an hour, but sadly were not able to save him. His partner, Matt is completely and utterly gutted & devastated. Not quite sure of the circumstances that led him to a sudden and quick adrenal crisis that was not able to be resolved. Team Addison USA sends all their love & heartfelt condolences to Matt and all that loved Ewan Bowers.... This is one of the major reasons, why Team Addison
USA, continues to promote awareness, so there is more knowledge out there on how to treat Addison’s disease . On how to live with it as comfortably as possible and how to prevent or avoid adrenal crisis and treat it expeditiously and properly and thoroughly.. So lives can be saved. Always remember to carry your oral meds and injectable Solucortef ( Hydrocortisone) . Stress dose always when needed . Monitor symptoms of impending adrenal crisis, call your endocrinologist and inject immediately your Solucortef and get to the ER immediately. To get immediate treatment with IV saline fluids, and IV hydrocortisone. Do not delay. Do not pass go, immediately get there for treatment and care. Have your endocrinologist call the hospital so they can prepare for your arrival and to get the proper treatment. Time is of the essence in these circumstances always.. Again Team Addison USA sends all their love to the loved ones and partner of Ewan Bowers.. Rest easy Angel , may you fly high to paradise…. Team Addison USA we promote Awareness for those effected by Addison’s Disease…🙏🫶🏻❤️