Fight Against DMD

Before Ibrahim, I never understood genetics, chromosomes, or why Duchenne mostly affects boys.

Now I find myself learning about things I never imagined — just to better understand my child and the condition he lives with every single day.

Awareness starts with understanding. 💙

Sometimes awareness means talking about the parts people do not see.

The disease.
The treatment.
And the battles children quietly carry through both. 💙

This morning, I was honestly very anxious.

Making a passport in Pakistan used to feel like such a big hassle, and I kept wondering how we would manage everything with Ibrahim — the crowds, the waiting, the accessibility. It felt overwhelming before we even left home.

But our visit to the Executive Passport Office, Clifton, Karachi turned out to be such a positive and smooth experience. ♿✨

Ibrahim was given priority due to his disability, stayed comfortably in his wheelchair, and they even took his photo while he remained seated. The entire process was completed in hardly 20 minutes, which honestly surprised us.

There was a ramp available — though it was quite steep — but the staff immediately stepped in to help us safely take Ibrahim up and down. A special thank you to the AD, who was extremely kind and supportive throughout.

Grateful for systems that are improving, and for people who make accessibility feel real. Moments like these reduce so much anxiety for families like ours. 💙

Muscular dystrophy is a genetic condition that leads to progressive muscle weakness, affecting movement, breathing, and overall strength over time.

For us, this journey has a name—Ibrahim. 💙
Through every challenge, he shows us what true resilience looks like.

Raising awareness isn’t just about information—it’s about understanding, support, and hope for better treatments in the future.

Every step he takes is a reminder: strength isn’t just physical, it’s in courage, patience, and love.

مسکیولر ڈسٹروفی ایک جینیاتی بیماری ہے جو وقت کے ساتھ پٹھوں کو کمزور کرتی جاتی ہے۔
ابراہیم کی ہمت ہمیں ہر روز سکھاتی ہے کہ اصل طاقت حوصلے اور صبر میں ہوتی ہے۔ 💙

Some memories are beautiful… but they hurt a little too much.

Sometimes I go back and watch his old videos…
Sometimes I close my eyes and try to remember how he looked when he used to walk.

But some days, that thought hurts a little too much.

So I remind myself — I have to be strong for him.
And truth is… he’s the strong one.

Once, we were passing by and I asked,
“Ibrahim, do you see the football statue?”
He immediately pointed towards it. That’s when I said,
“Oh wow, Ibrahim… you may be a great footballer someday.”

He smiled and said,
“No mommy… I can’t be a footballer because I can’t walk.”

For a second, my heart broke.
But then I said, “That’s okay… you’ll be an artist, because you’re already so amazing at drawing… and the way you build your little Lego worlds, maybe one day you’ll be an architect.”

And I know he will be. 🤍

There’s a quiet confidence in him when he learns like this—
familiar space, gentle pace, and a whole lot of curiosity…
online classes might feel like a hassle for some,
but for Ibrahim, they bring comfort, accessibility,
and the freedom to learn in a way that feels right for him.
With DMD, that makes all the difference ✨

A little boy, a heart so strong,
carrying more than most ever will…
and still, a smile that feels like Eid 🤍
Eid Mubarak from Ibrahim ✨🌙

Therapy disguised as play… and sometimes stretches too.

Behind the games and the stretches are quiet moments of courage.

For children living with Duchenne muscular dystrophy, these small routines help maintain strength, coordination, and mobility one step at a time.

And as parents, we learn that progress isn’t always loud or dramatic.Sometimes it’s simply a child realizing he’s a little braver than he was yesterday. 💛

We’ve all been down this past month—me, my daughter, and Ibrahim struggling to bounce back from a virus. And then he just laughs like this… and suddenly, everything feels lighter. That laugh is everything 🥹❤️