ALK Positive

ALK Positive

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07/16/2026

๐Ÿงฌ Join us TONIGHT at 7:00 PM ET for Clinical Trials Connect!

Have you ever wondered what it's really like to participate in a clinical trial?

Tonight's discussion features members of our community sharing their firsthand experiences in trials, including TRI-611, gilteritinib, BNT116, ivonescimab, neladalkib, and more. They'll discuss what motivated them to enroll, what the experience was like, and what they learned along the way.

We'll also provide a rapid-fire update on the latest ALK clinical trial developments, including key highlights from this year's ASCO Annual Meeting.

Whether you're actively exploring clinical trials, considering one in the future, or simply want to stay informed, this is a conversation you won't want to miss.

๐Ÿ“… Tonight, Thursday, July 16
๐Ÿ•– 7:00 PM ET
๐Ÿ”— Join the discussion here: https://alkpositive.org/event/clinical-trial-connect-2/2026-07-16/

Facilitated by Jeff Sturm, 11-year ALK-positive NSCLC patient, ALK Positive Board Member, and member of the Clinical Trials and Research Acceleration Committees.

We hope to see you there!

07/04/2026

Many people with stage 4 lung cancer are living longer because of advances in treatment. But living longer is only part of the story.

These therapies can come with side effects that build over time โ€” some visible, many invisible, and not always reflected by words like โ€œmild,โ€ โ€œmoderateโ€ or โ€œsevere.โ€

We know that side effects can change how we work, parent, sleep, exercise, socialize, or see our selves.

As more of us live years with metastatic lung cancer, we need more honest conversations. Topics like toxicity, quality of life, and the gap that can exist.

Dr. Sydney Barned understands this from both sides โ€” as a physician and as someone living with stage 4 lung cancer herself.

Sydney Barned spoke about this issue at . Be sure to watch our interview with Sydney on our YouTube channel with our Board Member Yvonne Diaz.

๐Ÿ”— https://youtu.be/G_DbSTMIlTk?is=q4VK1HhMFSC5t1gj

Thank you ASCO for bringing these important issues to the fore.

Have you developed any tips for managing your side effects? How comfortable do you feel raising it with your care team?

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