RARE Revolution Magazine

For many people living with rare conditions, the greatest pain is not physical—it’s stigma. Researcher, advocate and DEBRA International president Ritu has spent years trying to name and understand that harm. Drawing on her daughter’s journey with EB and global rare disease advocacy, she argues that we must start listening differently: to children who long to belong, parents who are tired of justifying, and adults who are forced to hide—as we consider the cost of being made to feel ‘less than’. Read here: https://bit.ly/RARESkin-DebraInt-RituAntoine


Debra International
Global Albinism Alliance