Steffens Scleroderma Foundation

Happy Fourth of July!

Today, we’re grateful for time to rest, connect and enjoy community.

We’re also thinking of those living with scleroderma, Degos disease and other rare diseases. We’re grateful for the families, clinicians, researchers and advocates who continue to support them.

Thank you for being part of this work and for helping move hope, understanding and progress forward.

Wishing you a safe and meaningful holiday.

The Degos Patient Initiative is changing how future health professionals learn.

This first of its kind event brought real stories and real insight directly into the classroom. Students listened. Patients led. Learning changed.

We’re proud that the last 10 years of work includes this important event that lifts rare disease voices and strengthens education for the next generation.

Learn more about the Degos Patient Initiative in our March 2026 newsletter:
https://www.degosdisease.org/news

Help us keep this momentum going. Share this post to support our mission.

Scleroderma care relies on many disciplines.

This month, we recognize the wide range of professionals who support people living with scleroderma and Degos Disease.

Medicine, nursing, pharmacy, nutrition, public health, social work and occupational therapy each play a role. Many more contribute their expertise every day.

Their combined work strengthens care and moves awareness forward.

Your voice helps this mission grow.

Share this post so others know that we support education, research and advocacy for the scleroderma community.