Liv4thecure

Check out our newest blog post written by our own Nancy Hellman about her experiences as a physical therapist with Olivia and Wolf Hirschhorn Syndrome.

A Physical Therapist Perspective on Wolf-Hirschhorn Syndrome Olivia's JourneyHer name is Olivia. Initially a new referral, she now resides permanently in my heart. No, I am not her parent, grandparent, or aunt; I was her physical therapist for four and a half years.Before Olivia, I had never worked with such a tiny infant other than in the NICU (neonatal inte...

Check out our new blog post!

Make A Wish During this holiday season, most of us will spend time gift-giving and sharing delicious feasts with family and friends. These priceless moments get repeated yearly without ever imagining them differently. So how does it feel for individuals facing a rare condition and their families? They see the y...