Tenk Yu Tru

It's been a while since I was last here. Still chugging along. Still surviving 😊🙏🏽
I had a wonderful mother's day with my mom, sisters, brother and kids. Thr whole get together allowed me time to reflect.

I have been missing in my social life and interactions with friends and important connections. Most have wondered why I have faded into the background. Non know the battles I have faced. I don't blame them. Who else can you chat with about a rare blood disorder except your partner and your family and closest friends who went through it all with you?
Now, you don't want to bother your friends because they got lives too, so you cocoon yourself within family arms and stay there.

I have been 'missing' for a good 2 years.
It was mainly due to me regressing.
Before that I was out and about. Positive and actually trying to be as normal as can be...
But I regressed. Not once. But twice. See when I drop in levels, it takes me a good 6 months to get through the medication and testing and normalcy. I finished that 6 months and within a week - hit bottom again. I was bruising and bleeding easily. I already knew what that meant. Another 6 months. Of bloating, insomnia, Manic eating, moonface, zits, fatigue, weakness in bones indigestion, heart burn, inability to stay out too long incase you catch something (see when I am on medication, my white blood cells are compressed therefore I am more open to catching diseases ect). And if anyone knows me well: I hate being sheltered. I hate being 'weak'. And in the duration of it all...I retreated. Because it was too much effort trying to explain why you can't hang out. Why you can't be 'sporty'. Why you can't do alot of things that you wanted to do. Because there were limitations. I didn't want to be the weak bystander who couldn't participate...so I hid. Into the love of my partner and family. I've been there for a while...2 years...flew by so fast...but...maybe it's time now.
To be a little more courageous. To trust more in the Lord and stop hiding. This year, the Lord be willing, I will live more.
I am tired of being weak and hiding behind that fear...this time I will step out. I have to, or life will pass me by.
Pray for me my loved ones. And I'll pray for you in return. This year's moto: 'Be Brave'.

May the Lord's blessing shine upon you always ❤️

It's been an amazing journey since that fateful day.
Each day is a blessing.
Each day I give thanks.
I never forget that my days are a gift.

I have moved from bi-daily blood counts to weekly, to fortnightly, to monthly to now, quarterly.

I credit my holding health to my God, my family, my partner and friends and colleagues.

Mind you, this is for life. Just know how to manage it a bit better.

I still experience drops.
I still have the low times where steroids are needed. But it's been manageable.