EAU Patient Office

Got an odd pair this spring? 🧦 Get them checked!

This April, for testicular cancer awareness month, we encourage people to give themselves a self-check to make sure everything is normal.

⏲️ When to check?
The best time to examine your testicles is during or right after a warm shower or bath, as the warmth relaxes the sc***um which makes it easier to feel anything unusual.

🤏 How to check?
Look for swelling, lumps, or changes in the scrotal skin. Examine each testicle individually using both hands. Put your thumbs on top and fingers underneath, gently rolling the testicle between your fingers. Feel for any unusual lumps or bumps, changes in size, shape or consistency.

🧐 What to look out for:
A hard lump on the testicle, swelling or enlargement of the testicle, changes in the shape or consistency, dull ache or heaviness in the sc***um

🩺 When to see a doctor?
If you notice any of the above changes, contact your doctor promptly.

📍 At , the EAU Patient Office was proud to support the EU BCLEAR project during the “Health Literacy in Bladder Cancer” session at the Patient Advocacy Plaza!

🎤 With insights from Alex Filicevas (World Bladder Cancer Patient Coalition) and Renée Leenen, MD (Erasmus MC Academie), BCLEAR is driving better bladder cancer awareness, patient education, and shared decision-making across Europe.

As the first EU-funded project dedicated to bladder cancer health literacy, BCLEAR brings together patients, clinicians, and researchers to empower informed decisions and improve care.

🔎 Learn more about BCLEAR: https://lnkd.in/gr5c-WcX

Some of our Patient Advocacy All Stars at ⭐

Congratulations are in order to....

💫 Pani Nasseri, who was awarded first prize in our Patient Poster Abstract session, with ✨ Renée Leenen awarded second place, and ⭐ Alex Filicevas awarded third place. We congratulate and thank our incredible award winners for their dedication and research within Patient Advocacy.

✨ Rob Cornes who was awarded the Patient Advocacy Medal of Excellence. Rob has dedicated his career to raising awareness of male cancer through support, education and the provision of written information. We thank and congratulate him on his achievement!

Well deserved! 👏

S*X!

Now that we've caught your attention, don't miss checking out the recently recorded webinar 'The patient and partner perspectives on the impact of female cystectomy, pe**le cancer and prostate cancer on s*xual function'.

In this webinar, we learned about that for 🧔‍♂️ prostate & pe**le cancer...
👉 Up to 85% of prostate cancer patients suffer ED post-surgery
👉 Pe**le cancer may lead to the total or partial removal of the p***s 🍆

And for female patients who have undergone a cystectomy...
👉 70%+ experience loss of vaginal sensation
👉Many can no longer have intercourse—even with therapy

🗣️ Patients say:
“I wish someone had told me s*x might never feel the same again.”

Radical urological surgeries don’t just save lives—they change them forever.

With thanks to our speakers:
Jacqueline Daly
Rob Cornes
Paul Campbell
Susan Richardson
Jon Osborne

https://lnkd.in/eZEprhG4

🧬 Closing the gap in prostate cancer care 🧬

Black men face significantly higher risks of diagnosis and death from prostate cancer — and that needs to change.

At the EAU Patient Office, we're proud to lead the Diversity in Prostate Cancer (PCa) PROMS Study, collecting direct feedback from Black men to improve treatment and ensure equitable care. 🗣️💙

🌍 This is more than research — it's about listening, learning, and making care more inclusive.

👉 Read our most recent article outlining the aims, objectives and scope of the project here: 🔗 https://lnkd.in/ec6SkG8E

📲 Soon you'll be able to visit our new webpage dedicated to the project on our redesigned website, and see how we're working to make a difference.

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