EDS Awareness Ireland

We are mobilising.

The Disability Federation of Ireland, Irish Wheelchair Association, and Access for all Ireland have announced a major national protest on Saturday, 28 February.

The government has refused our call for an Emergency Winter Payment. By removing "one-off" supports before a permanent solution is in place, they have left thousands of disabled households up to €1,400 worse off this year.

We are asking our colleagues, supporters, and the public to stand with us. Poverty is not a policy choice we can accept.

Join us: 📍 Garden of Remembrance, Dublin 🕐 1:00 PM 📅 28 Feb

We invite all Irish women to take part in this landmark UCC study on symptom dismissal and diagnostic delays in women’s health.

https://ucc.qualtrics.com/jfe/form/SV_8cvrTsgomSt2ebA

UCC has launched a study on women’s experiences seeking diagnosis for chronic health conditions. The study will look at experiences of medical gaslighting, where patients report their symptoms being dismissed or minimised.
'You can spend a decade trying to get someone to take you seriously and then spend 3 years on a waiting list.'

Researchers at University College Cork (UCC) want to hear from women experiencing chronic health conditions such as endometriosis, migraine, postural orthostatic tachycardia syndrome (POTS), premenstrual dysphoric disorder (PMDD), and mast cell activation syndrome (MCAS).

Launched in September 2025, the research will explore issues including diagnostic delays, patient–doctor interactions, ranging from symptom dismissal to supportive engagement, and how women use symptom-tracking apps to document and share their experiences with healthcare professionals, and responses to that data.

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