WAMES

MERUK notes that NHS Digital for England has agreed to a SNOMED CT UK code for very severe ME/CFS to add to ‘mild’, ‘moderate’, & ‘severe’ ME/CFS.

A parliamentary question has revealed that in England "There are currently no plans to develop a separate specification for severe and very severe ME/CFS."

https://www.meresearch.org.uk/no-plans-to-develop-a-separate-specification-for-severe-and-very-severe-me-cfs/

The proportion of child disability living allowance (DLA ) claimants who are refused an award when they are reassessed for PIP after reaching age 16 has doubled in the last 2 years.

B&W invites you to share your experiences as they work on a new guide to help members.

https://www.benefitsandwork.co.uk/news/child-dla-to-pip-failure-rate-doubles-in-two-years

Register now for the ME Voices Wales webinar on Mon 29 June, 1230-1330,
when Hywel Dda UHB will share how their LC & ME/CFS Service can support people living with ME/CFS in the 3 counties of west Wales: Ceredigion; Carmarthenshire; Pembrokeshire.

https://tinyurl.com/5y8btxpj [email protected]