ERN-Skin

📖 Publication spotlight: European Reference Networks - A flagship activity of the EU in the field of rare and complex diseases (2017–2025)

This article offers a comprehensive overview of the impact and evolution of the European Reference Networks (ERNs) since their launch in 2017.

The publication showcases how ERNs have strengthened collaboration among healthcare professionals across Europe, enabling access to highly specialised expertise for patients living with rare and complex diseases.

Key themes include:
- Cross-border clinical collaboration
- Patient-centred care
- Education and capacity building
- Research and innovation
- Digital health transformation

A valuable reflection on how European cooperation continues to advance equity and excellence in healthcare.

📖 Read the publication: https://link.springer.com/article/10.1186/s13023-026-04341-2?utm_source=rct_congratemailt&utm_medium=email&utm_campaign=oa_20260414&utm_content=10.1186%2Fs13023-026-04341-2



Rare Endo-ERNEpicare ERNEuropean Rare Kidney Disease Reference Network
Euracan EuroBloodNet - European Reference Network on Rare Hematological Diseases ERN eUROGEN
Ern-Eye ERN-LUNG - European Reference Network for rare respiratory diseases MetabERN ERN GUARD-Heart ERN RECONNET Ern-Rnd European Reference Network for Rare Neurological Diseases TransplantChild VASCERN: The ERN on rare multisystemic vascular diseases
VASCERN: The ERN on rare multisystemic vascular diseases

💡 Did you know?

French dermatology residents can apply for a scholarship to attend the 2026 WCRSD - World Congress Rare Skin Diseases. One of the leading international meetings dedicated to rare skin diseases.

The Société Française de Dermatologie is offering 3 scholarships covering:
🎟️ Free congress registration
✈️ Travel and accommodation support up to €890

📍 The congress will take place at Palais des Congrès de Versailles from 1–3 July 2026.

And good news: the application deadline has been extended to 29 May ⏳

This is great opportunity to connect with international experts, discover the latest advances in the field, and be part of the conversations shaping rare skin disease research and care.

Apply here before 29 May 👉 https://ec.europa.eu/eusurvey/runner/SFD_WCRSD

Fondation René Touraine - International Foundation for Dermatology

Applications are now open for the ITINERARE Rare Disease Summer School!

📅 June 23–26 | 📍 Kartause Ittingen

Join an intensive 3-day program featuring hands-on learning, cutting-edge research, and discussions with international experts in rare diseases. From therapy development to next-generation sequencing and patient-led research, expand your knowledge in a truly interdisciplinary setting.

- Present your work, get feedback, and connect with peers worldwide
- Open to clinicians, PhD students & postdocs
- Travel grants available + accredited program

📝 Apply by April 26 and share with colleagues who might be interested!

🔗 https://www.itinerare.uzh.ch/en/Events/Rare-Disease-Summer-School0/SummerSchool2026.html