European Sickle Cell Federation

Ending the month of June with gratitude and accomplishment. We are grateful for the ability to have achieved what we set out to do. We are grateful to our special guest speaker, Prof Peter Pritakis, for such an amazing session on Sickle Cell Disease in Sweden. Very informative and very encouraging 👍🏾 💪🏽🙌🏽

We extend our appreciation to our member organisation now known as Sickle Cell Association Sweden (ScAS) President Ms Nedda Al-ammar who bravely led and organised the ESCF Sickle in View Capacity Building Sweden with the support of Ms Marie Claire Kofi President of our member organisation

Thank you to all our members and the community who joined this session most especially our members and leaders Ms Elvie Ingoli President of .v.20 and Ms Maryanne Saunier Vice President for sharing their inspiring lived experiences of going through Bone Marrow Transplants for Sickle Cell at different stages of their lives. Sharing with us the challenges, uncertainty, hopes, and mental health difficulties that come with going through such a life changing treatment.

Their stories left a huge mark in our lives, gave us hope, and a renewed desire to keep up the fight for Sickle Cell patients all over Europe and worldwide. It further highlighted why unity, partnership, and collaboration in advocating for Sickle Cell is important, especially now when the prevalence is rising rapidly and more babies are born every day.

We would not be able to do this work without the support from our sponsors and

Your support has made a huge difference as we continue to improve and upskill our members in effective advocacy, leadership and governance, confidence building, community engagement, policy awareness, and much more.

Thank you to all those who support us behind the scenes, the visible and invisible. We are also grateful for those who push us in other ways, both positive and negative.

We remain committed to improving the lives of people living with in Europe!✨️💫

We are delighted to introduce our SILVER Sponsor


Their continuous support in ensuring our members organisations become stronger advocates for SCD through our capacity building workshops has generated a strong and positive impact for patients, families, and the community stigma large.

We thank you for your support towards this year's Capacity Building.