The Lost Labia Chronicles
10/09/2024
Hey, beautiful soul.
I hope you’re doing well and staying hydrated. If not, this is your gentle and friendly reminder to drink some water.
Feeling isolated or scared to talk about your lichen sclerosus (LS) diagnosis? You're not alone! My latest blog post for LSSN is here to guide you through the process of opening up to others. 💬
🌿 We discuss the common feelings of isolation and shame that come with an LS diagnosis.
🤗 Explore the benefits of sharing your story with friends and family.
🚀 Learn how to prepare and have these important conversations.
📖 Discover tips and guidance for talking to others about your LS.
Join us as we break down the barriers and stigma surrounding LS. Let's empower each other with knowledge and support! 💪
Click the link in my bio to read the full post or comment “Talk” in the comments below, and I’ll get that post over to ya!
Share your experiences and thoughts in the comments below.
Together, we can make a difference! 🌈
With love,
Jaclyn
03/14/2023
Hey, beautiful soul.
Does this sound familiar to you?
“You have lichen sclerosus. It’s considered autoimmune. You are at a slightly higher risk for developing vulvar cancer. There is no cure. Apply your steroids daily”.
When I was diagnosed with LS, that is all the information and guidance I got from my general physician. “Apply your steroids daily” is vague and unhelpful. “How many times a day”, I wondered, “and where and how should I be applying the medication”?
Many of us aren’t given information about our treatment plan when we are diagnosed. Your treatment plan is one of the most fundamental pieces with respect to managing your symptoms, slowing the progression of the disease, getting into remission, and reducing your chances of developing vulvar cancer.
In order to bring more evidence-based information and education to the LS community, I will be doing a treatment series on LSSN’s blog where I review various treatment options and what the science says about them.
For today’s post, I start with ultrapotent topical corticosteroids. It will be a two-parter, so make sure you come back for more! In today’s post, I share what lichen sclerosus is, why steroids are the gold standard treatment, what version is best, how often you should use them, and the best practice for the application. In the next post, I will review different side effects that *may* accompany steroid use and what you can do if they happen to you.
Click on the link in my bio or DM me saying ‘blog link please’.
Let me know how much information you were given about treatment when you were diagnosed in the comment section below.
With love,
Jaclyn
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