What's the Difference Podcast

We are back, tomorrow at 12 p.m. Eastern time!!!

Tune in to our first episode of the third season, "Integrated Sports for People with Disabilities". In this episode, we hear from (Jackie) and her new co-hosts and who weigh the pros and cons of inclusive versus integrated sports, and share their recreational experience as individuals with a mix of congenital and acquired disabilities (LINK TO THE EPISODE IS IN BIO).

We're still based on .fm which is now part of but you should be able to hear us wherever you get your podcasts! We'll also be posting the episode to our YouTube channel within the next 1-2 weeks.

Thanks to for partnering with us this season!

ID: Split screen image. On the left is Emilee playing goalball and on the right is Jenna taking part in cheerleading. The text "integrated sports for people with disabilities" is in the middle, with the Tru Faces and What's the Difference Podcast logo on the bottom right corner.

Hey y'all .... we are alive, and about to hit you with a big announcement ...

Stay tuned!

It's White Cane Week! For our new followers, you may not know that our co-host Sarah Patel lives with - a condition that causes severe vision loss at birth or early in childhood.

As part of advocating for public funding for Luxturna - a gene replacement therapy for LCA that is not yet publicly funded across Canada - Sarah's story is featured in this month's enews edition from . Here you can learn more about Sarah's story and add your name to the list of thousands asking for Luxturna to be approved. You'll find the link in our bio!

IMAGE DESCRIPTION: A woman wearing a long-sleeved long blue dress, a grey headscarf and sunglasses sits on rocks at the edge of a riverbank. There are trees on the opposite side of the riverbank.

REPOST FROM

"February is Heart Month, a time to reflect on the importance of our cardiovascular health and to learn ways we can manage our risks and prevent heart disease. This has extra meaning for those who, like me, were born with a congenital heart defect. Only a decade before I was born, babies with CHD generally did not survive. Since my birth in the mid 1980s, medical technologies in the cardiovascular field have progressed to the point where babies born today can lead completely healthy lives.

I have tetralogy of Fallot with absent pulmonary valve which has been corrected, but I am not cured. I have undergone three operations and numerous outpatient procedures to keep my health stable. While I was previously told I would need surgery every 10-15 years for the rest of my life, newer, more efficient surgical interventions means I may not need as many operations as doctors originally thought."

By:
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Photo description: a picture of Jackie and Hannah smiling.
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FROM OUR COHOST

Please help me get access to this treatment.

On November 25, provincial governments across Canada agreed upon moving forward to try to negotiate access to Luxturna.
 
Its taken a year to get this far after it was approved by Health Canada in October 2020.  We must expedite the negotiations to provide access to Luxturna as quickly as possible.
 
Luxturna is the first treatment approved by Health Canada that restores sight for an inherited retinal disease (IRD).  We are tracking over 70 more clinical trials that hold the promise of future treatments.  We must set the precedent of access to Luxturna to clear the way for these future treatments being available, and accessible, to all Canadians.

Please send email via www.ApproveLuxturna.ca with the new message – expedite the negotiations.



IMAGE DESCRIPTION: Photo of Sarah with a banner reading "breaking news" above her head. Text below reads "please help me get this treatment."

-canadian